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I don't know whether this has anything to do with the j-pouch but I'll ask here anyway.

For the last two months or so I've been feeling light headed almost every single day. On some days it can get pretty bad where I start to feel like I'm about to faint, but the majority of the time it's manageable and I can still do whatever I need to do.

I thought the problem would eventually go away but it hasn't. Has anyone else had the same problem and how did you deal with it? Should I just go and see a doctor for a general checkup?
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Funny you posted this because I have been having the same exact thing. It started about 2 months ago. I have iron issues so I thought it was that. I do periodic iron infusions and finished up a series of six two weeks ago. My levels are normal right now and I still feel like this. I just told my hubby last night I need to get to the bottom of this. I'm stumped.
Ever since my first surgery (total procolectomy) in March, I have been getting dizzy spells if I move from one position to another to quick. For example standing to quickly from a sitting position. Then roughly 2 weeks following my takedown, I was getting set to leave the house and out of no where i got that funny feeling and fainted.. face first i went on to the concrete.. thank god i didnt break my nose, just walked away with a scratch. Anyway, I called the surgeon and got set up for a complete cbc blood work up and results came back normal with the exception of slight anemia which wasnt cause enough for a transfusion. Apparently, I have been in that low range since my first surgery. They couldnt give me a definitive answer as to what caused it but thats my best guess because i never got that way pre surgery. Have you been checked for Anemia?
pointing the finger is logically the first step, if not directly then indirectly..
I experience the same exact thing, when going from a sitting position to standing up and moving, BOOM it hits, sometimes its to the point where i stop for a second and touch the wall.
I THINK i have found a combination of mild dehydration coupled with the medication in my system causing this..(I'm on cipro & flagyl, once a day)
Sometimes its so severe (and this one is rare) that things become blurry, i get real dizzy, i have to stop moving and stand/sit there until it passes..when it does, which usually takes about 4 seconds or a little more i just have a funny feeling like..was that real, how long was that? that happens when i lean back in a chair to stretch and then come forward really fast...somehow i have attributed that to oxygen related and my brain. strangely i am not worried about either..
Much of what is being described is postural hypotension. This is where your blood pressure drops dramatically when you move quickly from sitting or lying positions to standing. This is very common in the general population. Lots of different causes and lifestyle adjustments are the main treatment, along with treating underlying conditions, like dehydration and anemia.
http://www.mayoclinic.com/heal...-hypotension/DS00997

You should rule out dehydration, anemia, drug effects, neurological conditions. One thing to think about if you were on long term or high dose steroids is adrenal insufficiency. Even if it has been months or longer since you last took any steroids, this should be on your radar. The adrenals can be suppressed by long term prednisone use and you could have been secreting enough generally, but now are running a bit short, especially if your daily stress levels have increased, with return to work or other things going on in your life. The effect can be subtle, but unexplained symptoms can be important to recognize. Worth exploring if everything else checks out. This effect of steroid use can last up to a year after stopping them.
http://www.nadf.us/diseases/SE...%20INSUFFICIENCY.pdf

Jan Smiler
Can I add one other possibility? The middle ear. I have always had 'the dizzies' since I was a kid, occasionally so bad that I couldn't make it out of my bed (felt like the whole room was spinning)... they treated me on and off for middle ear infections but this last year I discovered that we have crystals in our middle ear that can get 'displaced'...which leads to the world tilting on its axis!...it took a couple of months and 2 attempts but they finally manged to put those darned crystals back where they belong...and the dizzies went away nearly instantly. (within 24hrs).
The other problem that I have encountered is an electrolyte imbalance...I tend to not eat when I have to leave the house for the day (go into town to work)because I don't like having to deal with my kpouch in public bathrooms here (not practical)...so I find myself with low blood sugar, electorlytes and totally dehydrated inspite of all of the water I drink. I start to get a 'hot flash' feeling, feel faint, shakey and sweaty...then I know that I am 'done' and need to get something healthy into my body fast...it rarely happens when I am home though...so I know it is the day fasting.
Sharon
I was extremely anemic for a good 3 months after my takedown and what you are experiencing was everyday for me living with that anemia so that could definitely be the cause. We all lose a lot of blood from the surgeries that it causes anemia in some of us. I was always anemic from my previous flare ups and most like was still when I went into surgery. This could be your problem and it will fix itself as time goes by. They had me on iron pills (ferrous sulfate) for months which helped give me a boost. The only problem is those iron pills had ever bad side effect on my digestive system that you could imagine. I was glad to stop taking them when my red blood count was back to normal. Are you feeling very fatigued and lethargic because that went along with the anemia? I would go see a hematologist to rule out any deficiencies also. I'm actually really surprised that you haven't had frequent blood tests scheduled after your surgery. Good luck hope you find the answers you need.
There could also be a lowgrade, generalised infection brewing in some people (I had gram positive staff)...I carried a nasty one for about a yr before it was diagnosised..I could barely make it up the stairs in my building to get to my front door...cried for a year from the fatigue...they got a handle on the infection and after that I was fine...
Sharon

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