Feel like giving up .. jpouch.. despair..scar tissue

So sorry you are having to deal with these issues. I know everything can be overwhelming sometimes.

I haven't experienced what you are talking about. I have pretty much the opposite and still "go" all day and night, still about 10-12 BMs a day no matter what I eat. The good thing, from my experience is in time, it calms down. I am now 15 months past takedown and can almost sleep all night. So keep asking questions and demanding answers from your doctors. Prayers and good thoughts to you.

Cramping pain is fairly common. Mine is quite intense and lasts for a second or 2 before passing.  It generally indicates to me a bathroom break is required, the longer I defer that break the more painful it gets.

Maybe you just need more toilet breaks?  twice a day is very low for a jpouch, maybe you are over medicating or holding too long?  If not maybe you would benefit from taking a laxative to encourage you to go more often?

A jpouch typically has capacity to hold 300ml (mine is slightly larger than this). It is not a stretchy and flexible as a colon.  When it reaches capacity it will hurt!  The more you eat, the more it fills, the more bathroom breaks you will require.  

For most people food passes through largely untouched, especially high residue foods. 300ml isn't a lot of storage space at all (basically a can of cola in capacity)

Hth

So terribly sorry, I know how overwhelming it can all be...as you said, it has been a horrible year for you.

I get phantom pains in my upper right quadrant...they take my breath away...no diagnosis...1st they thought that I had stones in the common bile duct, then adhesions, now I just accept that they will come, throw me for a loop and then be gone until the next time...mine are not pouch but surgery related...probably due to all of the surgery that I have had (or phantom gallbladder syndrom...apparently it really is a thing.)...either way, I have found a way to accept and live with it (no, I do not like it but what choice do I have...? My students are getting used to me suddenly sucking in my breath, bending double...sweating bullets and then exhaling and being just fine...I explained and they deal with it just like I do)

As for the women, the scars, the explanations? Don't bother...I spent my life worrying about the wrong things...What would the man think, what will the guy say, what happens if he sees my scars???

Honestly, I wasted 20 yrs worrying about stuff that in the long run, just doesn't matter...no one cares, not really...

It is all about attitude and acceptance...I don't like my scars and my hubby doesn't either but they are part of who I am and he loves all of me, not just the pretty parts...

You might need to mourn the loss of your body image...But once you accept yourself so will everyone else...and if they don't? Then they are not worth it.

Sharon

It's been awhile since I have been on forum. I have had my J pouch since 2011. I had to have surgery in July to remove scar tissue. According to my doctor I was a "mess"! (I tried telling her that)! Now, I suffered an obstruction earlier this month but made it through with no surgery!! Whew!! My issue is that I have the sudden pains and also have the irritable bottom that will not heal. My doctors answer is always the same, it will get better with time!! How much time?  

Does anyone have any suggestions? I have used everything that has always worked for me in the past. It doesn't matter what I eat. I am miserable!!

V