fecal transplant not advised for refractory pouchitis

Rebe0505Member

just to clear up some things on the issue of fecal transplant..they are working on fecal pills..good news but bad news it is not recommended for refractory pouchitis but for eliminating c-diff for cases where it is reoccurring and antibiotics not working..

recently my husband asked dr. shen about it for my chronic pouchitis and he wrote back that he has tried it on various patients with refractory pouchitis and it has not been successful..

10/13/143:03 AM

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Jan DollarModerator, RN, retired

Sorry to hear this. It is not too uncommon for a novel concept to have a lot of hope hanging on it, only to find that it is a pipe dream. Inflammatory gut diseases are some of the most complex challenges the medical community have.

Thanks for sharing this information, even if it not good news.

Jan

10/13/1412:07 PM

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CTBarristerMember

I had asked my GI (who is a protege of Dr. Shen and studied with him at Cleveland Clinic, and still talks to him regularly) about fecal transplants to treat pouchitis a long time ago, and his comment was: "all that it is, is a strong probiotic." He was decidedly less than enthusiastic about it as a treatment for my pouchitis. He was more positive about VSL#3 DS as a treatment. But if VSL#3 DS and their progeny are not working to effectively treat active pouchitis and bring it into remission, chances are that fecal transplants will not do so either.

10/13/1412:49 PM

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AllyKatMember

Well it did nothing for me!

10/14/1412:56 AM

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Rebe0505Member

i think it makes sense it would not work for refractory pouchitis as this condition is ongoing and ever changing due to so many factors so its not a one shot does it kind of thing..

10/14/141:25 AM

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AllyKatMember

I did it for a week. I think the pills or suppository form r something I would look into as a on going process.

10/14/148:31 AM

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