Hi everyone,
I've been reading the newest information on the
"poop pill". It referred to treatment for Cdiff. Has anyone read that we may be able to is it for Crohn's or UC?
THANKS.
Lisa
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Well, no, since it is specifically for treatment of C. difficile. So unless you have a C. diff infection in addition to your IBD, I don't think it would be prescribed. However, they use stuff off label all the time, so maybe on the horizen!
Jan
Jan
LisaT - I heard about that too - isn't it in Canada? Is it actually even approved for Cdiff or just in experimental stages? I think docs would consider doing it off label for IBD.
I heard about a fecal matter transplant way back in my UC days but realized my GI docs never recommended it because it was more for infections like CDiff and not an autoimmune disease like UC or Chrons. It similar to taking probiotics but totally removing all the waste that your body has that may be contain a lot of harmful bacteria and replacing it with someone else's fecal matter that has more healthy bacteria in it. Kind of creepy if you ask me.
Well - I think it is different with this pill - I think they are isolating the good bacteria which could help.
Maybe I have an over-active imagination, but the hole idea of "poop pills" and "fecal transplant" and how they might be manufactured leaves me gagging.
I think they need a good PR program to create a less gag-inducing name for it.
.
I think they need a good PR program to create a less gag-inducing name for it.
.
Come on David - it's only like 24-30 pills at one sitting And they're triple-layered for digestion in the colon (I guess they would have to custom-make double-layered pills for those of us with j-pouches).
Pkitty - I have not read they are isolating the good bacteria. I believe they filter out the particulate matter, and I read they also make sure there are no pathogens (parasites, bad bacteria, etc.). So in that sense they isolate the good bacteria. But besides the known offenders like C-diff, that's one of the problems they have - what combination of bacteria constitute "good bacteria?" They do not know yet - and also don't know if it differs from person to person.
For the record, I'd have no problem downing 30 poop pills if it would have cleared up my UC. I might have even done the poop enema - though that is harder for me to stomach, actually.
Steve
And they're triple-layered for digestion in the colon (I guess they would have to custom-make double-layered pills for those of us with j-pouches).Pkitty - I have not read they are isolating the good bacteria. I believe they filter out the particulate matter, and I read they also make sure there are no pathogens (parasites, bad bacteria, etc.). So in that sense they isolate the good bacteria. But besides the known offenders like C-diff, that's one of the problems they have - what combination of bacteria constitute "good bacteria?" They do not know yet - and also don't know if it differs from person to person.
For the record, I'd have no problem downing 30 poop pills if it would have cleared up my UC. I might have even done the poop enema - though that is harder for me to stomach, actually.
Steve
Yup you are right Steve. But I cannot find anywhere whether this is even approved or if people can try it? I am sure a lot of people with IBD would love to give this a shot.
There is an article today on Medscape titled Fecal Transplant Pills for C difficile
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Cassiecass
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Cassiecass