Hey fellow j pouchers! This is my first time posting... I had my 2nd of the 3 J-pouch surgeries on November 28th- so about 3 weeks ago. After the first surgery (colon removal) I was feeling really good and back at yoga and the gym the 3 week mark (obviously just walking on the treadmill, but active and feeling energized and ready to get healthy for the 2nd surgery). By November I was fully back to work, life, exercise and feeling GREAT. This time around I am SO TIRED that all I want to do is sleep or just lie in bed. At first I thought it was just the recovery process and maybe some dehydration from so much output, but I think its the 8 pills of Limotil I am taking a day to stave off the aggressive diarrhea (#1 side effect is fatigue)... Anyone else experience this? Its just such a a stark contrast between how I feel after this surgery vs. the first one and the only change is the addition of Limotil. Any suggestions? I have added Metamucil into the mix (15 minutes before meals along with the Limotil), but I don't think I can stop taking the Limotil all together... Any suggestions on alternatives, perhaps better times to take Limotil to help with fatigue or anything else would be so appreciated!
UC patient: diagnosed 22 years ago (used to take Entivio, Methotrexate and 20 mg Pednisone). Subtotal colectomy: August 2016, J Pouch creation: November 2016, Takedown surgery planned for February 2017. Currently taking Iron, .5mg Dexamethazone, 8 pills Limotil a day and Tylenol as needed.
