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Instigatr
i had surgery back in 3/99 for FAP, no problems, just found i had the gene that causes the problems (got it from my dad).
he learned something new yesterday and after reading on here i see no reference to it.
are those of us with FAP prone to jaw bone cancer? my dad got sent to a dental specialist (i am not sure what the specific area of expertise was), reason he was sent was for white spots on his teeth. the dentist said for whatever reason, this is a precurser of jawbone cancer. apparently if you have FAP (or Gardners syndrome) there can be bone growths on your lower jaw bone that can also turn cancerous. the dentist told him he ran into it 20 years ago and that was how the patient found out he had FAP.
anyone else heard this?
Aaron

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BillVBillVMember
When I was 12, my dentist pulled a baby tooth to allow an adult tooth to come in. Attached to this tooth were numerous small teeth. This dentist had never seen this condition before and did not attribute it to FAP/Gardners syndrome. After I was diagnosed with that condition at age 35, my surgeon at Mayo Clinic noted a bone growth on my lower jaw that he stated was attributed to Gardners syndrome. In over 30 years, this growth has not changed in size and no trace of cancer has been found there. Hopefully, you will not have any problems with this. I also had a growth by my ampula that was discovered by a regularly scheduled endoscopy and was successfully removed and has not returned.
BillV
C ChuckusMember
Yes, those of us with FAP/GS can have additional bony growths on our jaws and such, extra teeth too......sometimes it can turn cancerous, most times it isn't.

Also, I'd like to give you some information.

FAP is a mutation within the gene, not a gene.
FAP = GS and GS = FAP they are one in the same.

Not trying to offend you, but, just want to make sure you have the terminology correctly and are using it correctly.

Have you had Upper Endoscopies done every year with a side viewing scope?

Have you had your thyroid ultrasound done? Live ultrasound?
C

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