FAP and natural pregnancy. Is it possible?

FAPqueenMember

I have FAP and received 2 step jpouch surgery over the span of a year and a half. I’m 27, partner is 26

I have struggled since adolescence with baby fever. After diagnosis, me and my long term partner concluded that having children was not worth the risk of passing down with terrible disease and we have been very careful. My surgeon told me there is a risk of infertility post surgery. We have been pretty careful in preventive measures

partner is against IVF but not against having children if I decide I want to have them. I don’t want to do IVF either. The 50/50 chances just scare the shit out of me. A lot of my cousins with FAP have had children with seemingly no issues, though their children haven’t all been tested yet.

Im so torn up. I don’t know if it’s just my hormones telling me I want to have children out of fear I will regret it?

has anyone conceived naturally? Or only with IVF? Did your jpouch cause any complications?
c section of vaginal birth?

Please share your experiences and spare no detail if you feel comfortable

7/14/2310:45 AM

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labloverMember

Hands on your back.

7/15/233:02 PM

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Rachel IsobelMember

Just seen your post today. So my comment may not be relevant anymore but no harm in sharing.

My mother had her colectomy in 1959 was told she would never conceive. She went on to have 5 children, I am the only one with FAP. So you would more than likely be able to conceive naturally.

I have chosen not to have children, I am 57 now and very happy with this choice.

My mother is still going strong at 86, although she had a Whipples procedure in 1989 due to severe FAP manifestations everywhere.

I think watching my Mother struggle after this surgery is what made me decide not to have children.

There is a test that can be done in early pregnancy to see if the baby has inherited FAP. I would strongly recommend that you avoid this. (Could share more information privately about this, if you’re interested.)

My Mother didn’t know she could pass on Fap, I do know and like you I couldn’t handle passing it on.

Deciding whether to have children or not, when you have FAP is huge. However, you still have enough time to really think about it, maybe have some input from a genetic counsellor.

Incidentally I’ve never heard the term baby fever, what is it ?

2 days ago

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