Had my EUA yesterday at Cleveland with Dr. Hull. She had a newer MRI which gave her a "roadmap" and she was able to ascertain that there was only l main hole inside my jpouch - whew - relief! The tract, which she said was very twisty/turny, leads to the outside of my vagina. She was able to place a seton in it. I'm not sure about the other 2 sinus tracts that were mentioned on MRI. Things will be reevaluated in about 6 weeks, when I'll also be able to ask lots of questions.
I didn't get to talk to her after the surgery, but my husband did; however, I was able to speak with the fellow who was also involved in the EUA. Apparently there's no pouchitis (or very little), mild to moderate cuffitis, and the jpouch is small, which could explain my need to go as often as I do. There's some kind of thickening - sounds like in the perineal area and possibly the pouch as well. She called it induration. She said it was thick and firm and the word "infection" was mentioned. She said this "needs to go away". (Unfortunately, my husband is not the best note-taker - but a saint nonetheless, so this is all I know about it.) I'm to stop the anucort and the canasa, as they - in particular the anucort - might possibly be contributing to the induration. I didn't get any news about the Crohn's question, forgot to ask. It sounds like she's got some plans on how to "fix" all this, but I have no details, and probably won't until 6 weeks.
Setons: Y. U. C. K. What a mess down there! If anyone really wants to hear the gory details, let me know, but... wow. I was pretty shocked at the appearance, but as I don't have future plans for making it big in the porn industry, I'll survive. Fortunately, there is not much pain today, but still some bleeding. Got a script for percocet, which is helpful with the minimum pain I have. I really don't feel the seton at all, except for cleanups after BMs. Thank goodness for the suggestions that were made out here for bidets. Couldn't survive without mine. Wish they had them at work...
The "surgery" itself, which is what CC calls it, was quite a process - got there at 8:00, left around 2:30. Everyone there was so great. I am really impressed with Dr. Hull, but will confirm that after this is all said and done. Anyhoo - the EUA: I got a shot of heparin (the nurses didn't know why, but it was ordered), fluids (routine), and a few other meds, I think antibiotics, and was then put out with general anesthesia. The actual "surgery" lasted about 40 min. The recovery went on 'til 2:30ish. Things moved quite smoothly and on time. Today, I have a headache, a sore throat from the tube, and some bruising on my legs and girly parts, so it must have gotten a bit rough in there.
I would not like to make a habit of these EUAs, but will do what whatever it takes to deal with these fistulas and whatever else is going on in there.
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