Didn't even have time to think about it.  But after everything subsided with the surgery I had no problems. 

Even after I had it removed and went to an ileo.  

Heal first.  Think of that later. 

It'll happen. 

I didn't have any issues after I started feeling better.  Before that, I wasn't even thinking along those lines.  The most important thing is to just relax and heal.  Your anxiety around this issue will do you more harm than your surgery. Good luck.

David W posted:

I didn't have any issues after I started feeling better.  Before that, I wasn't even thinking along those lines.  The most important thing is to just relax and heal.  Your anxiety around this issue will do you more harm than your surgery. Good luck.

Your absolutely right. I need to just focus on recovery. I was just worried about all these complications I read on the research. 

I wasn't really either thinking or too concerned about it after surgery. And certainly I had a urinary catheter for some days after surgery as well. But I eventually found that the male equipment worked as well as it did before surgery. Surgery was in my 20s and everyone is a virile stud in their 20s. When you hit your 40s and 50s things will change as far as that goes. There is nothing anyone can do to stop or change the aging process except to counteract it by exercising, eating well, staying fit and keeping your weight down. If you do all those things and take Cialis erectile dysfunction can be controlled.

I've been gong to the J pouch support group for 10 years since my surgery.  We have had hundreds of people come through there in that time, and no one has mentioned this issue. Reading all the possible complications that are possible after surgery is like reading the long list of possible side affects of medication; they sound scary, but hardly anyone ever experiences them. Age is much more likely to cause this than the surgery.  Fortunately, there is medication you can take that will make that part of you 20 years old again. Good luck.

 

Hey it's a new world, I am a 31 year old healthy male and have Hirschprungs. I have had my colon removed and had a J-pouch built. The 1st surgery was in Aug 2015 and the reversal in Jan 2016. I am still unable to have an erection on my own and I use catheters 3-5 times a day to empty my bladder. The Docs told my this would be a risk but a small percentage. I currently use Edex for the erection problem. If you have any question feel free to email me. 

I've asked this in another forum, but I thought I'd try here too, my BF has the pouch and seems very stressed about sex... He's 8 weeks post takedown. Is this normal?? He doesn't have an issue getting an erection. He's been very guarded about sex since we met. He suffered with severe UC and was very embarrassed with the ileo bag. So there's been very little intimacy since we've been together. Any advice is greatly appreciated TIA

It can sometimes take a while to get used to your new body.  It sounds like your BF is already "a little guarded about sex", so it might take him a little longer to get used to this major body change. This sounds more like a mental issue with your BF than a physical issue.  Be loving (like it sounds like you are) and patient and things should work out.   

I had no problems after surgery. I think you should relax and take light ecxercises

Tia, I responded on the other posting, it sounds like you have to be the aggressor in a loving way, and sex or intimacy doesn't have to be defined with him having an immediate erection to ejaculate, and that shouldn't be the first goal, let him know that, and if you are willing to work with him, I think you will see improvement there. He has a set expectation for himself, and if you don't talk about it and try to walk through sorta speak, it will be a standstill.  David, 10 years and you haven't heard of this issue? Every time I go to Jpouch Facebook or other places of J Pouch support, THIS IS THE ISSUE for guys, and if the younger ones on here are ok, then that is great, and they should be very grateful, but I would say they are not the norm. This is a serious potential outcome, and it is something a urologist should consult with along with your surgeon doctor. I was advised before my surgery, so I was mentally prepared for this issue. Good luck to everyone on recovery and healing.

Sound advice from ROLLAND333.

Roland333 

I agree, I've been being aggressive but not overly, and although he doesn't get an erection right away, he eventually does. It's been 4 months since take down and he gets better every time. I've read where men who have this same issue find they have low testosterone and can get something to help that, but I haven't brought it up to him. I don't want him to be more self conscious than he already is. I'll give him a while longer and see how he does. Another symptom that he has of this is lack of energy. He is tired ALL the time.

That is cool, I would just let him know that he is desired, hearing it, and being intimate are two different things. You can give him standard lip service with nice encouraging remarks, but I speak from experience, a guy wants to know by feeling you work WITH him, can't get any more blunt than that. If you back off to much, he will start to wonder? Am I not good enough, not man enough, not etc, etc. Most guys, not all, but they REVOLVE around this ability to please and be all that a guy can be, and giving space only works to a point, I would rather have a lady be a tad pushy with the remarks, hey, I still want you, and we will work through this with everything we can...being physical seals intimacy in a guys mind, not words. And it doesn't have to be intercourse and the pressure of an erection. If a partner is cool enough to handle that and help, then any guy going through this is truly blessed Lack of energy can be a sign of low testosterone, push through and have him get this looked at, ONLY  doctor can do this and it should be monitored and the urologist needs to know about the j pouch too, it will help with a good plan. Take off the kit gloves, he will thank you later