Entyvio for Crohns. Anyone on this fairly new drug?

joanCMember

Hi, I tried many things for my Crohn's over many years. I have had this disease since I was 27 and I am now 72. The new drug, Entyvio is my last resort. Colon removed in1998. Illostomy converted to k pouch in 2003. Works great but have active Crohns. Been on some sites that discuss Entyvio but not too much info.

I am on my third infusion as of August 4, 2016. I believe it is helping but will know more At Cleveland Clinic in early October where I will have my pouch scope by Dr. SHEN

anyone out there on Entyvio or have been Thank you

8/6/169:44 PM

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ShavonMember

It’s been a couple years - how is the entiviyo working for you? I used it for about 16 months during a clinical trial. I loved it so much that I testified in front of the FDA to get it approved. Unfortunately it eventually stopped working for me. However I still strongly recommend it

9/8/183:50 PM

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