My pouchoscomy was a failure. Inflammation level 3 after more than 10 years lots of problems found. Dr. recommends trying infusions of entyvio as a last ditch effort to save my jpouch. Has anyone had this offered as a treatment to stop the erosion taking place. Medications tried yep the whole list have not worked. Any sharing of your experience would be helpful
Replies sorted oldest to newest
I think you trying Entyvio will be the best thing for you at this point. Entyvio is the number one biologic for Crohns and Ulcerative Colitis. I think that will be the best thing for you inflammation. If it does not work, at least you can say you tried 
@Oldlady posted:My pouchoscomy was a failure. Inflammation level 3 after more than 10 years lots of problems found. Dr. recommends trying infusions of entyvio as a last ditch effort to save my jpouch. Has anyone had this offered as a treatment to stop the erosion taking place. Medications tried yep the whole list have not worked. Any sharing of your experience would be helpful
I’m sorry to hear what you’re going through.
I was on Entyvio and it worked great. Unfortunately it affected my liver so I had to stop. You should definitely give it a try if you feel comfortable taking it.
Good luck, hope it works well for you!
Thank you at this point after dealing with 10 years fo failure I'm hoping for a future. Did your liver rebound and did you go to another drug. Hope i can get anothe 20 years.
@Oldlady posted:Thank you at this point after dealing with 10 years fo failure I'm hoping for a future. Did your liver rebound and did you go to another drug. Hope i can get anothe 20 years.
I hope it works out for you hon!! Please keep us posted!!!
@Oldlady posted:Thank you at this point after dealing with 10 years fo failure I'm hoping for a future. Did your liver rebound and did you go to another drug. Hope i can get anothe 20 years.
Yes my liver enzymes went back to normal after a few months. I did not go on another biologic, my doc decided on a steroid until I figure out if I want to try another treatment.
10 years on Entyvio. It worked great till it stopped working. I’m now trying Skyrisi. Good luck.
@AllyKat posted:10 years on Entyvio. It worked great till it stopped working. I’m now trying Skyrisi. Good luck.
What happened??? WHy did it stop working???
Would be interested in everyone s side effects with Entyvio.. I did another post before I saw this one .. the aches and joint pain is overwhelming me ;( ;(