Endometriosis Removal

Hi TIA,

Please update this thread if you can as I’m definitely interested in the advice you receive. Was dx with endo during pouch formation (just thought hormones were changing as I aged causing more painful periods in my 30s and dealt with it). Now I suppress ovulation with meds as I’ve had tons of surgical complications and pouch issues since takedown and trying to eliminate any contribution of endo. My gynecologist told me any further pelvic surgery would be very complex and risk the pouch so fingers crossed it doesn’t come to that. It’s a lonely place to be as pouches themselves are rare enough at certain medical centers and when you add in endometriosis it seems everyone is like, “hmm, maybe, we don’t see a lot of this.”  CC is probably a good bet and I’d love to know what they say. Particularly, how do they know endo implants are the culprit? Wish you the best.

I have endometriosis as well. It was found during my colectomy. Though the cysts were removed during that surgery, more cysts developed. My colorectal surgeon said endometriosis removal is too risky for my j pouch. I'm not on any hormones to suppress ovulation because they cause me severe depression, so I depend on Percocet every month.

I'm also curious about other women's experiences.