After I eat it takes between 1.5 and 2 hours to reach my pouch, I then spend about 45 minutes going in and out of the bathroom about 8 times. I am actually very very lucky to be fully continent, am in full control of the emptying and there is just no urgency like UC. I have pouch pain during and after the process.
Also, if I eat a meal (not large) a few minutes later I just loose all my energy, have to lie down and feel nauseous. Tend to avoid actual meals and just graze.
Do other people have these issues and have any tips?
Many thanks
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