Skip to main content

Hi all,

Had my date with my surgeon yesterday and found out my pouchogram looked great. Now, it's decision time. My surgeon told me that the fact that I take Metamucil twice a day and Immodium 4-6x per day to get things to a pudding consistency means that I will likely have increased frequency after surgery - 8 or more times in the bathroom a day. (If I don't do meds, it is just like water). Is this true? I am only emptying my ileostomy 5x/day now and am worried now about trading for much higher frequency. I have had my ileostomy for a year. Did you all notice a correlation? Thanks so much for your help. This decision is soooo difficult. Driving me insane!
Original Post

Replies sorted oldest to newest

I never needed meds during the loop, nor after takedown.

However, I don't think it's like your fate is ABSOLUTELY sealed after takedown to need meds, though many do. The pouch adds an extra length of bowel which can con't to allow fluid to be absorbed. Over time, the pouch learns to absorb more.

I don't think you'll know for sure til takedown, unfortunately. But again, many utilize Metamucil, Immodium, Lomotil, etc. to thicken and slow things down, but many can taper down over months to years.

Learning to adjust your diet in the beginning can help, too.
I took six Imodium tablets every day when I had my loop ileostomy and my output was still mostly liquid. The difference is night and day with my j-pouch -- I only use the bathroom 5-6 times per day and if anything my consistency tends to be a little too solid sometimes.

No one can guarantee your situation one way or another after takedown, but your surgeon is wrong to say that needing bowel slowers before takedown is indicative of a need for them later. The fact is that right now a significant portion of your ileum is defunctioned, and it's entirely possible that after takedown when it's brought back "online," your output will thicken naturally on its own.
Rachel - yeah...I have heard a lot of it's "patient dependent" answers and it seems like this may be another one. Where is that crystal ball when you need one? Smiler I am curious as to why no one seems to be doing any studies to try and track these things, since if there are any correlations, then that could help predict future success. so hard to make a decision about a surgery when you don't know what the outcome will be.

Liz - good to know it does not appear to be a direct correlation. At least it wasn't for you. I definitely don't want to go backwards in quality of life and my surgeon saying what he did had me worried. Amazing to think that 1 to 1 1/2 feet of intestine can make that much difference!

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×