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I don't drink alcohol, but I've had pouchitis several times and inflammation that being helped with medication.  I do eat too much sugar at times, which is more apt to cause pouchitis for me. 

Oh I am sorry to hear that! I live off of sugar and never got pouchitis *Knock on Wood* lol. I am a vegetarian though so maybe that helped me along the way in addition to Greek Yogurt. Are you doing okay now???

I'm doing great so far, PTL! I'm learning that each of us is different in what our bodies will tolerate and what it won't. I use a probiotic, but I'm also very thankful there is medicine that can help keep me "normal". 

Lol. And yeah I learned that a lot on here! I never truly knew that until I got on here. Its amazing how we have the same system but each of us can tolerate things that others do not. Like for an example, I have over 10BMS a day easily but some have 4BMS- interesting lol. You are probably taking a biologic like Remicade for the inflammation. What probiotic are you taking??? 

Last edited by Former Member

I take Entyvio for the inflamation.  I am also on Budesonoide and Imuran. My probiotic is Align. I used to use Culturelle, but it didn't work that well for me.

I remember you now! We talked about Align a while ago, so nice to hear from you again!! I just got through reading your profile, I never knew you had Crohns, I am deeply sorry to hear that! How long did it take for the doctors to realize you had Crohns after getting J-pouch surgery???

I take Entyvio for the inflamation.  I am also on Budesonoide and Imuran. My probiotic is Align. I used to use Culturelle, but it didn't work that well for me.

In addition to my previous statement, have you ever had pouchitis while using Align??? And Align has a: cheaper version at Target with 4 billion more probiotics in it, making it 5 billion total- its cheaper with more pills. Check it out at Target, its under the brand name UP&UP. And if you sign up for a Target Credit card, you get 5% off it  

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