Skip to main content

Hi, I had got operated ( 3 stage surgery) in 2017, I am in no medication post surgery . Have had occasional blockage and pouchitis issues , but manageable . Of late I am always facing a burning sensation while passing stool and the no of times of urge to pass has increased significantly. If anybody has experienced this , please could you share how you have got over of it . Any medications taken. My doctor is not of much help till now for this problem. Eager to get solutions as it is pretty painful and draining

Regards

Hemu

Original Post

Replies sorted oldest to newest

@HEMU posted:

Hi Scott,

Thanks for your response

Well no blood observed , burning sesnsation is at anus part as of now ( edge)

Your input of cuffitis is useful , trying to get an appointment with my Doctor who had done my surgery for further advice

Wanted to know how long did you take Cipro+ Flagyl to manage the problem

Regards

Hemu

Hemu, I have been on antibiotics continuously for 16 years. Most folks with pouchitis can clear up the occasional case with a simple 14-day course of Cipro or Flagyl. Some of us, though, have what’s called “antibiotic-dependent pouchitis.” In those cases pouchitis symptoms invariably return shortly after stopping antibiotics. These days some of us still stay on antibiotics, and some switch to a biologic medication (there are now numerous choices). If my antibiotics fail I will likely make that switch.

Since your frequency seems to be increased it’s possible that your pain is simply caused by that. In that case I’d guess pouchitis to be a bit more likely than cuffitis.

Last edited by Scott F

If the pain happens mostly while passing stool and afterwards, then you may have to consider a fissure at the anus also (often a little inside so you can't see it and it might be mixed up with inflammation of the cuff). If some particle gets stuck in a fissure during a BM, then there is a burning sensation for quite some time, which is very uncomfortable especially at night.

If it feels more like a painful pressure from inside which makes you go to the toilet more often, then a cuffitis (+ pouchitis?) is more likely.

This is basically identical to what I go through. For the last couple years the issues I have been dealing with have not been fully diagnosed by my Dr. I will start having more frequent BM's, urgency, little amount of stool each bathroom trip, pain in the inside of anus, this pain always seems worse at night. Basically what I think is happening is I have some form of chronic pouchitis that leads to inflamed anus and pouch, i will have terrible pain and sometimes i will develop a fissure. I have been taking Cipro routinely, which helps a lot, I am also prescribed Nifedipine for the fissures or if im having pain after a BM. This combo seems to be working pretty good. After being on Cipro for at least 6 months, im thinking about maybe changing to probiotics or flagyl and see how i do with those. Im praying it can be managed w probiotics but im certainly not banking on it. Flagyl has less side effects, mainly that it doesnt cause potential tendon tears. Im looking to start BJJ and the last thing i need is a torn tendon, I need to get healthier. If worse comes to worst and probiotics and Flagyl dont work for me I will have to just bite the bullet and stick w Cipro. The Dr. has always talked about calmoseptine like its a cure all but thats for external stuff..The combo of antibiotic w nifedipine has worked pretty good. I also have a bidet and pat myself down w a towel instead of toilet paper (when i can).

Glad you are going to try!! Let me know how you like it

Well i consulted my doctor before applying

my doc was of the opinion it will surely help for outside skin portion, since in my case the burning sensation is just inside layer of the anus he suspects occurence of fissure and has advised me to use a cream Anobilis to be applied inside

if this does not work he will do a sigmoid scopy

he has also given some medications to control the urge to pass

i see immdiate result , no of times controlled, cream applied a couple of times has shown reducing trend in burning sensation

Keeping fingers crossed that it would work

Once I stabilise i will pay a visit to my surgeon to take a complete look

regards

Hemu

For fissures nifedipine has worked wonders. Basically when you get a fissure in that area all of the tissue swells and becomes inflamed. Because it's so inflamed it can't heal. Basically the Nifedipine allows the tissue to relax so it can begin healing. For the first year I had this horrible pain and the dr sort of kept blowing me off until I said we need to fix this bc something isn't right and my quality of life is suffering. Once I was given nifedipine it was instant relief and took about a week for it to heal. Now I use it on a regular basis when I feel a fissure might be coming on.

@HEMU posted:

Well i consulted my doctor before applying

my doc was of the opinion it will surely help for outside skin portion, since in my case the burning sensation is just inside layer of the anus he suspects occurence of fissure and has advised me to use a cream Anobilis to be applied inside

if this does not work he will do a sigmoid scopy

he has also given some medications to control the urge to pass

i see immdiate result , no of times controlled, cream applied a couple of times has shown reducing trend in burning sensation

Keeping fingers crossed that it would work

Once I stabilise i will pay a visit to my surgeon to take a complete look

regards

Hemu

I looked up that cream, it looks pretty good!

@Dlo posted:

For fissures nifedipine has worked wonders. Basically when you get a fissure in that area all of the tissue swells and becomes inflamed. Because it's so inflamed it can't heal. Basically the Nifedipine allows the tissue to relax so it can begin healing. For the first year I had this horrible pain and the dr sort of kept blowing me off until I said we need to fix this bc something isn't right and my quality of life is suffering. Once I was given nifedipine it was instant relief and took about a week for it to heal. Now I use it on a regular basis when I feel a fissure might be coming on.

I looked that up as well! And it looks great!!

Mine has lidocaine, nifedipine and hydrocortisone. I can barely use it due to extreme screaming pain every time I apply it. No one else is mentioning the intense pain of med? Maybe my % of lidocaine is too high. 5%. Have used for 5 days and minimal improvement in that area. Actually seems to heal without output  then a BM sets it back.Have had somewhat  reduced frequency, likely due to taking Cipro. Arghhh!

@Ljz posted:

Mine has lidocaine, nifedipine and hydrocortisone. I can barely use it due to extreme screaming pain every time I apply it. No one else is mentioning the intense pain of med? Maybe my % of lidocaine is too high. 5%. Have used for 5 days and minimal improvement in that area. Actually seems to heal without output  then a BM sets it back.Have had somewhat  reduced frequency, likely due to taking Cipro. Arghhh!

That sounds terrible!! HAve you tried Calmoseptine???

@Ljz posted:

Yes I tried using Calmoseptine initially after my takedown in 2014 but found the menthol or whatever very painful also.  Thanks for suggestion though!

Seeing Colorectal surgeon Wednesday where I live and driving to  CC Thursday for consult there. Maybe (hoping) to get suggestions on how to move forward!

Yeah some people cannot take that menthol, its rough for some people unfortunately. You probably have very sensitive skin which can be a good thing too.

Perfect!! Lets us know how it goes!!!

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×