Cutting seton :(

I had a Seton stitch used as an (failed) attempt at breaking through a recto-vaginal fistula. It was excruciating and they ended up having to remove it and resort to surgery. Sorry I don't have a happier story about that. They may have to loosen the thread, but if the Seton is being used to excise a fistula they may not recommend that because it will take longer.
I'm so sorry you are not getting relief from the pain meds. I know how hard and frustrating that is. Try to stay positive and continue communicating with your doctors - if you can bear it, the pain may be worth not having further surgeries. Make sure your doctors give you a clear idea of what to expect and when to expect progress and let them know if things are not on track.

If you don't mind could you explain more to what happened to you? You can private message me. I just would like to know if its like in the same place as mine and if we had the same thing done. Right now I'm uncomfortable and feel like a baby. I guess thank god for pain meds and Pinterest! Ill be on that until those meds kick in :/

Sure, the Seton stitch basically went all the way through the fistula (tunneled from rectum to vagina - only like 1cm into the vagina) and tied around the perineum. They had to pull it after two or three days. Things are a bit fuzzy due to the meds at the time - I just remember being hysterical by the time they decided that the Seton was not the way to go. I've never been very good with pain - and I've become quite tolerant to meds over the years - 23 years of pain medication makes you akin to a rhinoceros or an elephant - so it's difficult to convince them to give me therapeutic dosing.

After they removed the stitch - I was scheduled for various other recto-vaginal fistula repair surgeries, all which failed until they did a complete jpouch advancement - cutting out the offending rectum and the fistula with it.

If you have any specific questions, just let me know - I have no qualms discussing my illnesses and treatments. If you want to private message me, that is fine too! I hope things go better for you than they did for me.

PS I looked up mushroom drains after reading your post and found a link to a forum to someone who has experienced using those. I've never heard of them so if you need info on that: http://www.healingwell.com/com....aspx?f=17&m=1589594
The woman who has it is named Phoebe, just scroll down a bit.

the mushroom drain is now gone so i dont have to worry about that but now its the cutting seton. I just dont know how i feel about this. It is really painful. The only thing keeping me up is the fact Dr. Remzi said the first 4 days are the worst and I will be in pain, but what is it like after? And will I always be uncomfortable? And the didnt give me refill for pain meds so will they give me more if I need it ugh just so frustrating.

CAN YOU EXPLAIN THE JPOUCH ADVANCEMENT SURGERY? my sinus is in the cuff, hasnt caused me any real issues..knock on wood.

Absolutely - it's a last resort effort for issues such as yours and mine. LAST RESORT. My colectomy was in 2004, I started having the fistula (about the same area you have yours, it sounds like,) in 2005 and repairs were started in 2006. After the seton stitch, the attempt to "patch" up the hole with tissue from one side of my vulva (bulbo-cavernosa), and the attempts to use muscle from behind my knee and in my upper thighs to "patch" up the fistula all failed, they decided on the Pouch Advancement. They went in through the original abdominal scar (above the belly button down to pubis) from where the conducted the colectomy. They removed the pouch and disconnected it, cut out the portion of the rectum (small tiny bit) that was affected by the fistula and reconnected. I had another temporary ostomy at that time but my problems with those are a whole other story . (I'm a doctor's worst nightmare, but you may have an idea of what I mean.) The vaginal side, thankfully, healed almost immediately, though I was still scarred and healing from the initial attempts. It's used as a last resort because most people heal better than I did/do and respond to the other options well. The more you remove from that end where the rectum is left, the less control you have, and less you have to work with in general.