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I currently have a loop ileostomy and I'm awaiting take down.

I use a 2 piece Stoma appliance with a closed bag and during the last few weeks or so, I last for hours before I must change a bag, sometimes up to six hours.

Within a 24 hour period I'm using roughly 4 or 5 bags, which is more or less identical to the output when I had the end ileostomy.

When the reversal is performed why would my output increase ?

I'm currently taking Imodium 2 x 4 times per day, yes to slow down my output but without, my output is still thick.

Last edited by Former Member
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Your bag doesn't have nerve endings or muscles, or any living tissue for that matter. The only factor that affects when you need to change it is its volume. A j-pouch is not like this. It is affected by things like your circadian rhythms, when you eat, and the things you eat.

For example, eating triggers the gastrocolic reflex, which stimulates muscle contractions along the entire length of the GI tract. You experience this now with your bag in that when you eat a meal you probably have more output. The difference is that with a j-pouch, at least in the beginning, eating will stimulate the j-pouch itself -- not only does the flow of output into the j-pouch increase, but the j-pouch will want to contract and expel its contents also. This affects different people to different degrees but most people shortly after surgery experience that eating makes them feel an urge to empty their pouch, even if it's empty.

Another factor is that surgery on the intestines simply changes their behavior in ways that we don't really understand. People on this board who have the experience of having multiple ileostomies know that some ileostomies are high output and others are not, and it is not always related to the amount of bowel upstream. As far as I know, medical science does not know why this is. It just is.

Finally, going six hours without emptying a j-pouch is not unusual. I usually have a BM every 4-6 hours, and I would say that's on par with average (the most common response from j-pouchers is 4-6 BMs per day). So although it's possible that your frequency will be higher with a j-pouch, there's a good chance that after your pouch matures it will go back to something *similar* (not the same) as the schedule you're used to now.
Your J-pouch must learn to act as a reservoir. The small intestine that now acts as a j-pouch is originally programmed to constantly contract. It must adapt. The amount of output may be the same, but the frequency is Highly variable after takedown.

On another note, are your Ostomy bags disposable?? Most people empty their bag in the toilet and change their wafer and bag every 2-7 days.

Dan

Thank you for all the very knowledgable replies, a lot to consider, which I didn't.

Yes, I use disposable bags.

I change the bag 4 or 5 times per day & I also dispose of the contents down the toilet.

I change the flange & bag every 3 or 4 days; I'm not most people.

Last edited by Former Member

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