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4 replies

Cuffitis pain is killing me. What can I do?

B Big-VMember
Hi all, I had J Pouch surgery in 2000 actually three surgeries if you include the fistula. Since them I have had some small bouts of pain but nothing major. J pouch surgery was a life saver. Fast forward to 2011 and I have developed cuffitis. It's been kind of on and off since 2011 but just recently (like in the past 3 or 4 months) its been more on. I don't think I was in this kind of pain when I had UC. Right now I'm on Mesalamine suppositories but I'm not seeing any relief. I have a few questions for you and I pray you folks can help me.

1) While I'm waiting for the meds to start working I am in a TON of pain. My idiot doctor tells me to stay away from over the counter pain meds but then gives me nothing to replace them with.
Is there anything I can take?

2) I have noticed that if I drink only juice and water for most of the day I do find some relief but I'm not sure how long I can keep that up.
Is there an eating plan or diet that would help?

3) Does anyone know of a really good GI in the Tampa or Orlando Florida areas that is well versed in J pouch, Pouchitis and Cuffitis?

Please get back to me soon as I could use any suggestions.

Thanks, Vince
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R Rebe0505Member
you should consider th cleveland clinic i assume one in florida just as up todate on jpouch..my doctor is in cleveland i live in cal..hopefully there are disciples of dr.shen there which i think there would be..

pain iuse vicodin..but must get perscription..cannot believe your dr. is not giving you something for the pain..hope some other cuffitis suffers will answer you soon..i actually had it back when i had surgery for few years but it kind of died..thank god..however i have my own trials and have what is now diagnosed as sibo bacteria overgrowth which causes terrible pain..lived on antibiotics for 7 years straight now just doing diet to eliminate food that feed bacteria..antibiotics not perscribed for cuffitis i know..hoping you get some relief soon...
Jan DollarJan DollarModerator, RN, retired
While cuffitis will cause crampy pain, it should not cause big time serious pain. I wonder if you have an anal fissure in addition to your cuffitis. That would cause major pain and OTC pain meds would not do much. Also, inserting Canasa suppositories would likely make it worse. In that case, oral mesalamine is a better bet until things calm down. Even anal irritation would be worsened by suppository insertion.

Norco, Vicoden or codiene would help with the crampy pain.
Jan Smiler
B Big-VMember
Thank you Rebecca and Jan for the help. I honestly think Jan hit the nail on the head. I did some research into Anal Fissures and started to follow a prescribed eating plan as well as care plan and the difference is night and day. I am also going to contact the Cleveland Clinic to see if I can find a referral in my area.

Thanks and God bless.

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