cuffitis and proctofoam

allswellMember

I will probably find out cuffitis is my problem at my follow up. I just have a feeling something is definitely not right. For those that have used proctofoam - saw in another post - did it clear things up permanently or is it a maintenance situation where it is used every few days? I definitely can't deal wit how things are right now. After getting a taste of sleeping through the night with the ostomy, I am having trouble accepting getting up three time a night. Plus I have constant irritation internally that gets worse by the end of the day. It is very distracting.

9/26/1411:40 AM

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CJBMember

Everybody is different, right? But I have to say that my 18 year old pouch started having problems that my surgeon diagnosed as cuffitis. I was on the canasa (Salofalk) suppositories and they helped, but only a bit, and my symptoms kept coming back. Then she prescribed proctofoam and it was exactly what my body needed. I took it for 3 weeks then did a slow wean off of it. It's been almost 4 months now and all is still well. Gotta at least try it.
I think it worked well for me, as I always responded well to prednisone when I had UC.
In any case, I hope it works for you!
C-jay

9/26/147:07 PM

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DaleerMember

Cuffitis is basically recurring colitis in the 1 or 2 cm of rectum retained for a j-pouch. Of course symptoms should be much less because you only have 1 cm or so of inflammation rather than an entire colon. Hopefully the doctor will get you feeling better soon.

9/27/142:21 AM

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