HI Kerry,

I don't know anything about cuffitis but for the arthritis and/or joint pain I know tons.

They say that fats such as the omegas help with joint pain along with glucosamine and condriton, biotin, collagene(there is a hair/nails/skin mix that has a lot of this stuff already put together inside of it) and tumeric.

I use it all mostly. I have found that the most significant help comes from a great chiropractor and from exercise. I need to get my spine, hips and legs realigned regularly (at first 2xs/week and now every 2-3 weeks ) to get relief...every session helps enough that I can push the sessions further and further apart and things hurt less as we go. (if I could stop falling down all the time I would do even better but I drag my right leg a bit).

Stretching, walking swimming etc do wonders too.

I am on high doses of anti-inflamatories and massages but hopefully you won't get there...try, test, note it down and then chart it to see what works for you.

Certain foods can also be triggers for you like sugar, chocolate, breads and glutens etc so check that out too.

Sharon

Yes that's definitely arthritis. I was diagnosed with arthritis 5 years after my JPouch surgery. It started off with 1 finger, then 1 knee, then elbows etc. Eventually I went on Enbrel for it. You should see a RA doctor and chiropractor is definitely a plus too.

So, along the same lines... I've been having soreness and stiffness in my fingers, as well as back pain (the back has already been diagnosed as arthritis in the facet joints).  My question is this... my Primary Doc ran 2 blood tests, Rheumatoid Factor and ANA, and both came back negative.  She said there is NO obvious signs of inflammatory arthritis.  But she said I could go to  an RA doc if I wanted.

 

So, I'm wondering... could joint pain/arthritis still be a condition related to the UC, even though I've had a J-pouch for over 15 years?  I had the joint pain/swelling prior to being diagnosed (a long time ago), and figured that it all went away like magic with the J-pouch surgery.

 

Can I still be having inflammatory responses, even though the J-pouch was supposed to "cure" the UC?  And if so, is an RA doc the best person to go see for help?

 

Any insight would be GREATLY appreciated!!  Thanks.

Enteropathic arthritis, a form of spondyloarthritis, is a form of seronegative arthropathy. That means that negative blood tests mean nothing, other than to rule out other causes, such as rheumatoid arthritis and lupus.

 

I was diagnosed after months and months of low back pain and my primary sent me to a rheumatologist. Random peripheral symptoms may not be enough to make a diagnosis, but there is a form of enteropathic arthritis that involves only the peripheral joints.

 

Please do request a referral to a rheumatologist. Your primary doc is not qualified to diagnose.

 

Jan

 --Linda