I am very new to this. Since my takedown, 2011, i have had a few instances with pouchitis but now im concerned about the amount of blood im losing. someone mentioned cuffitis, never heard of it.
Claudia
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Did you have UC? If so you can get cuffitis which is UC at the cuff where the j-pouch is stapled to the rectal stump. The most popular surgery is the double stapled procedure. They remove all of the rectum with the colon except for around 2 cm of the rectal tissue at the very bottom and that is what they staple the j-pouch to attach it to the rectal cuff. As that tissue can get UC in some of us it does. Bleeding can be from having UC in that little bit of cuff tissue and it can be very painful too. I think there must be about a bazillion nerves right there. Some GI's can examine for this without a scope but many will want to do a pouchscope and take biopsies. I treat mine with Canasa which is a suppository containing the oral medication we took for UC.......
So they lied when then told me I was going to be cured with the surgery.
If you have any more questions please ask.
So they lied when then told me I was going to be cured with the surgery.
If you have any more questions please ask.
Thank you...it sounds exactly like whats going on with me, but im not sure i understand the difference between the pouchitis and the cuffitis.
My doctor wants to scope me next week.Im feeling really weak..the increased bathroom trips all seem to be in the night.since my takedown things had been relatively ok with the occassional blockage and pouchitis. no onetells you all this..thanks for the info
My doctor wants to scope me next week.Im feeling really weak..the increased bathroom trips all seem to be in the night.since my takedown things had been relatively ok with the occassional blockage and pouchitis. no onetells you all this..thanks for the info
The symptoms are the same, the only difference is cuffitis can bleed but it doesn't always bleed. It is just inflamed at the cuff. Pouchitis is inflamed in a larger area of the pouch. Pouchitis can be treated with antibiotics and cuffitis can't. You can also have both at the same time. I have had a c-diff infection at the same time as cuffitis and it has the same symptoms too and it is treated with antibiotics.
I'm sure your doctor is going to take a lot of biopsies and pictures. Ask her/him to see the pictures and for a copy of them after the test.A picture is worth a thousand words in this case. It made my husband more understanding.
Please let us know how you are doing after you scope. Good Luck and pleas keep hydrated!
I'm sure your doctor is going to take a lot of biopsies and pictures. Ask her/him to see the pictures and for a copy of them after the test.A picture is worth a thousand words in this case. It made my husband more understanding.
Please let us know how you are doing after you scope. Good Luck and pleas keep hydrated!