Crohns?

The terminal ileum location suggests that it might originate with backwash from the pouch causing inflammation, the inflammation causing the stricture, and the stricture causing stool stasis, which could potentially have caused the ulcers. I don’t think Crohn’s is likely to turn out to be your problem. It’s best to keep the stricture managed as needed going forward.

I cannot tell you how hopeful I am that you are right!! I have a virtual appt with a gi doc at Cleveland clinic next week so hoping she can provide answers....but, they gave me someone new so we will see. THANK YOU

@Scott F posted:

The terminal ileum location suggests that it might originate with backwash from the pouch causing inflammation, the inflammation causing the stricture, and the stricture causing stool stasis, which could potentially have caused the ulcers. I don’t think Crohn’s is likely to turn out to be your problem. It’s best to keep the stricture managed as needed going forward.

Basically everything Scott said above- should be repeated. Worrying about whether's it's Crohn's is utterly pointless- all the treatments are the same regardless of what you call the inflammation or where it is. What's important is whether the treatment works.

I have the exact same situation going on. You will be indeterminate on Crohn's by any knowledgeable expert and anyone who tells you otherwise has an opinion you likely shouldn't trust. And you will always be Crohn's indeterminate. It's like trying to determine whether the chicken or egg came first. Or other pointless questions that you can beat yourself up on and never answer, unless you like doing that.

The best they can do is look at the pattern and see if it's mostly close to the inlet and nonexistent at a certain point above the inlet beyond the reach of the backsplash. If so, common sense should suggest the answer. That's how my pattern was analyzed.