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Just realized that I posted this in the wrong site, so here it is again!

Have been having some pains that feel like I have a partial obstruction every day, and are quiet uncomfortable. Plus I have been having a lot of gas and sometimes difficulty in passing stool and if that is the case, there's usually bright red blood on the toilet paper. I never seem as though I am completely empty. So, due to all of this, I decided it was time to contact my surgeon.

He felt that I should go in for an MRE, which I did on Wednesday. In any case, after reading the report, he said that the pouch looked fine, but it looked like I had a narrowing in the intestine, and would like me to see a GI doctor, which he will get for me, as soon as possible.
He felt that it was Crohn's and of course, I'm quite uptight about it.

He did not mention a stricture, but wondered if strictures do happen above the pouch? I guess I'm trying to look on the positive side and hoping that this is the case.

The thought of the meds that go along with Crohn's and going back on Prednisone, which did a number on me when I had UC, is nothing that I look forward to, nor is the Remicade that I have been reading about, and then of course, there's always the possibility that I will need surgery to remove the section of the colon that is affected.

Any thoughts? Questions to ask the doctor? Any help would be appreciated.

Thanks as always.

Replies sorted oldest to newest

Yes, stricture at the pouch inlet is the second most common type, with anal stricture most common. It does not mean Crohn's, but it might reflect chronic pouchitis. The bleeding could be from ulcers that can occur att he narrowing.

These can be dilated by balloon dilation during endoscopy.

Even if your diagnosis changes to Crohn's it does not mean you will go back onto prednisone. That is NOT a maintenance medication. There are other meds besides Remicade too. But, first things first. See a GI. Get the proper treatment and diagnosis. Then you can concern yourself with "what next."

Jan Smiler
Jan Dollar
Yes you can have a stricture above the pouch. I don't think it always means crohns. Hopefully Jan or someone will have more information for you.

In my daughter's case, with a sricture above the pouch, they did a balloon dilation (under sedation)and that opens the area up and then you see how you do after that. Each case is different.

Best wishes.
B

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