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Hope everyone is doing well. Crohn's disease. Can you get Crohn's disease after you get the jpouch? My surgeon said usually they don't do a jpouch on people with crohn's. No more ulcerative colitis with the jpouch, but can you get crohn's after you get the jpouch done? Having the jpouch got me off of so many meds that I was on when I had ulcerative colitis bad and I wouldn't want to have to go back to all that. Thanks.

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Yes you can. Some say that you had Crohn’s all along, but just not manifested yet, when you develop Crohn’s post colectomy. Others (more recently) say that you can get a totally new IBD as Crohn’s that develops independently. I am unsure that it really matters.

I recommend you enjoy your j-pouch and not worry about the future. None of us knows what our future may bring. I have had my j-pouch since 1995 and do not have Crohn’s.

Jan

Jan Dollar

Hi JoeJoe! I’ve had my pouch for 30 years. It’s been a great ride for most of that time. The pouch gave me freedom to work, play, and travel that I don’t think I would have had with an ileostomy.  It gave me tremendous quality of life.

And I definitely don’t regret that I made that decision even though I just recently received a Crohn’s diagnosis. I agree 100% with Jan, ever the voice of reason on this site.

Wishing you all the very best, JoeJoe!

P
Last edited by Portia

Thank you. I'm so happy for you and everyone on here who have been having a good quality of life with the pouch. I'm happy I had this surgery and have the pouch now. As we all know, it takes some adjustments and seems to be a continuing learning. The UC absolutely destroyed my life and took so much opportunity from me for too long. I'm grateful for every as I have been given a second chance at life. 11 weeks out from take down.

J

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