I had mouth sores when I was just starting to show symptoms of UC (this was about two months before I was diagnosed and at the very beginning of the digestive problems stage). They went away when I got really sick and I haven't had them since. I am fairly sure I don't have Crohn's because the histology done on my intestines after surgery looked really good and I haven't had any pouch problems. They might be a general sign of inflammation? I would worry if they were combined with a lot of digestive problems. In general, I like to use diluted hydrogen peroxide for sores and some of that topical mouth sore gel (it makes your mouth all gooey and numb though). I think salt water is supposed to help too. I know you are supposed to use it after oral surgery.

Thanks for your reply. I will try the hydrogen peroxide to see if I can get any relief. Do you remember how long yours lasted?

Swishing with mylanta does the trick.

Mylanta? Really? Wow I will have to get some and try that.

I think I had them for a month or so but I kept biting them and making them worse! I've had my pouch for 12 years now so my memory is a bit fuzzy. Good luck!

Hi I had really bad mouth sores when I had UC in 1985 the only thing that helped was a sticky ung the Dr. prescribed which I of course am having a senior moment and can't remember when I do I'll let you know. At present I am in the same boat as you I probably have Crohn's of the pouch and inlet have granuloma a inflamation. Also mouth sores under the tongue my GI says it is the IBD as it is not too bad I use salt on my fingue and put didectly on the area will help for awhile and then comes back. Have just started Humira for inflamation hope to get off pred.

Knew I would remember it is called Kenalog Orabase it is a dental med. for mouth sores is very sticky so it stays in place is presc. worked very well for me did not stop new sores from forming but healed them quickly so I could eat they only quit forming after the large bowel was removed and the j-pouch constructed. Like I said I have a couple back now but not like it was back then. Hope this helps you. Shawne

Thanks, Shawne!

Same thing with me. I had sores in my mouth before my diagnosis with UC (which is now Crohn's 8 years later after they found granulomas this past summer). They used to tell me it was due to my period coming but I think it's related to the Crohn's because its happened significantly less since treatment. When I used to get them really bad though my doctor prescribed me something called, "magic mouthwash" and it numbs the sores for an hour or two.

-Alicia

Alicia- what are you on for crohn's treatment? Have you been having symptoms of crohn's other than the granulomas?
Thanks,
Rosie

I had a really bad one before my colon was removed. It hasn't come back since and there have been no indication that I actually have Crohn's (knock on wood, right?)

Ora-jel or anything to numb the mouth helped a lot.

My primary care doctor just gave me a prescription for "magic mouthwash" and it definiely numbs the mouth. Ahh relief for a little while anyways. I am going to see my g.i. doc tomorrow, so we will see what she has to say about it being crohn's related.

I am an inderterminant UC-crohns and since being diagnosed with lymphoma 11 months ago ahve been getting many sores outside the mouth at the corners as well as sores around my face.