Skip to main content

My orginial diagnosis was UC. After a recent pouchoscopy, my doctor found a granuloma and thinks that I may have Crohn's. I have heard that Crohn's can affect your mouth as well. So my question is are sores in your mouth a sign or symptoms of Crohn's? I remember the doctors in the past asking me if I ever get sores and I didn't at the time. Currently I have at least five sores inside my mouth on the cheek and tongue and gum line. It is so painful and they don't seem to be going away.I can hardly eat and brushing my teeth is excruciating. Advice or tips on how to treat them? Does this mean I most likely have Crohn's?

Thanks,
Rosie
Original Post

Replies sorted oldest to newest

I had mouth sores when I was just starting to show symptoms of UC (this was about two months before I was diagnosed and at the very beginning of the digestive problems stage). They went away when I got really sick and I haven't had them since. I am fairly sure I don't have Crohn's because the histology done on my intestines after surgery looked really good and I haven't had any pouch problems. They might be a general sign of inflammation? I would worry if they were combined with a lot of digestive problems. In general, I like to use diluted hydrogen peroxide for sores and some of that topical mouth sore gel (it makes your mouth all gooey and numb though). I think salt water is supposed to help too. I know you are supposed to use it after oral surgery.
Hi I had really bad mouth sores when I had UC in 1985 the only thing that helped was a sticky ung the Dr. prescribed which I of course am having a senior moment and can't remember when I do I'll let you know. At present I am in the same boat as you I probably have Crohn's of the pouch and inlet have granuloma a inflamation. Also mouth sores under the tongue my GI says it is the IBD as it is not too bad I use salt on my fingue and put didectly on the area will help for awhile and then comes back. Have just started Humira for inflamation hope to get off pred.
Knew I would remember it is called Kenalog Orabase it is a dental med. for mouth sores is very sticky so it stays in place is presc. worked very well for me did not stop new sores from forming but healed them quickly so I could eat they only quit forming after the large bowel was removed and the j-pouch constructed. Like I said I have a couple back now but not like it was back then. Hope this helps you. Shawne
Same thing with me. I had sores in my mouth before my diagnosis with UC (which is now Crohn's 8 years later after they found granulomas this past summer). They used to tell me it was due to my period coming but I think it's related to the Crohn's because its happened significantly less since treatment. When I used to get them really bad though my doctor prescribed me something called, "magic mouthwash" and it numbs the sores for an hour or two.

-Alicia

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×