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Hi all,

I was browsing the forums and noticed sometimes enemas/suppositories are used for pouchitis. When I still had my colon I responded well to cortifoam - it went in more comfortably than enemas or suppositories and retained very well. Has anyone ever been prescribed this for pouchitis? I'll of course ask my doctor about it directly, but like to get feedback from other patients when possible.

 

Thanks!

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I have used Cortifoam for cuffitis, but stopped because of concern over it thinning the tissue down there and the possibility of it leading to incontinence. I do believe it got rid of my Cuffitis and bleeding, but am having other issues now and thinking of returning to use it. Any information on possible negative side effects of cortifoam, especially any possibility of it leading to incontinence would be greatly appreciated! Ljz

L

LJZ,

I used cortifoam for a few years when I still had my colon and was not informed of any risk of it leading to potential incontinence (and knock on wood have not had issues in that department outside of active flares). In the time I took it I had no negative side effects, and LOVED it after a history of dealing with retention enemas. Did your doctor tell you that it could cause a risk of incontinence with a j-pouch? I'd be very curious to know.

Good luck!

Janine

J

prior to having my colon removed, hydrocortisone enemas, unpleasant as they were, were the most effective med for me. mind you this was 30 odd years ago, so that might be less relevant to todays discussion. that aside, I did ask my doc recently if she thought it might be a worthwhile treatment option and she agreed that it might be worthwhile to try. we haven't, but she wasn't against it. I am a little surprised by the thinning comment and fear of creating incontinence.

deweyj

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