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so I had UC for years until it blew up on me in 2010. I needed immediate surgery in 12/12. The take down went well in March of 2013. I've been on SSI since 2010. Post operative I still have 12-16 bowel movements a day and often go in my sleep . Sometimes it is uncontrollable . I haven't had the nerve to do a pouchescopy yet but my doctor wants one. I've been on cipro 5x in the last year. The doctor says I have chronic pouchitis . Does anyone think SSA will take my benefits away? I'm 45 now . I've been mounting up some psychiatric issues like severe anxiety because of the bathroom too. Thank you so much reading . If anyone knows if I will still qualify for benefits please let me know . 

 

Thank you

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Sorry, I don't understand your question. When did they say your claim would be reviewed as you were approved?  My approval letter said it would be reviewed in 5-7 years. According to the pamphlet sent with the letter a 5-7 year review means they felt my disability was not expected to improve.  I don't remember the exact times and reasons for review timing but I think one could be coming up for review at around 18 months and another 3 years. Those with shorter review times were more likely to improve. The timing of your disability and mine are similar.  My surgeries were 11/2/10 & 12/29/10.  I also have other medical diseases/syndromes with the highlights below in my signature.  

 

I don't see how you would be in jeopardy of losing your benefits if you are still disabled.  I'm sorry you are having so much trouble with your pouch.  It adds to our anxiety when we are in fear of losing our income. 

 

All I'd like to suggest is that if they do review your case you list everything that is wrong with you including counseling.  I never asked why I was approved. I assumed it was due to everything that was wrong with me and not just one thing.  If I could get well enough to work again I would do so happily. That would mean my pain and disability would be gone and I'd be making a lot more money than what I receive in benefits.  I'm sure you feel the same way.

Last edited by TE Marie

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