Construction of the J Pouch

Did you have a one step surgery?
Sounds like it.
Yes... Lots of pain.
Don't be afraid to ask for relief.
Good luck to you Nora.  I hope it works out for you.
Others will have more answers.
I had an illeo hooked up after surgery so if you went straight to the Pouch I cannot a answer some questions.

No, they're doing a 3 step operation.  I'll go back in late November to get the plumbing hooked back up!!  I seem to have more pain with this go around!  Any and all advice is appreciated!!!  This is something that folks don't think about because the colon is kind of either not talked about or only whispered about!!!!
I hope they can get my pain under control!
Nora

So.... I get they took your colon out made a pouch and an illeo.
When I was in the room after surgery it was kind of a blur but they had a tube hooked to my illeo that was hooked to a rather large bag by the floor.  I didn't feel anything coming out or have any urges from my pouch for quite awhile.  But I had two rather quick emergency surgeries afterward that messed me up.  I was cut wide open.  But I was at the point your at now. 
If so... Yes.... Very painful but controllable.
I was on a pain pump for days.
Other painkillers also that made me forget to use the pump.

Got home today, but the drive home and stressful news, I'm hurting really bad.  I start Metemucil, 2 x day; Ibuprophen, 600 mgs every 6 hours; Tylenol, 1,000 mgs every 6 hours; and pain nausea every six hours. There was an excessive amount of scar tissue which shocked the surgeon because my removal was just 5 months ago.  Glad to be home, I'll heal faster.
Stressful news, mydog died today while I was still in the hospital.  I sure hope this shit storm stops!!
But home, step in the right direction!
Nora

Glad you are out of the hospital but so sorry about your dog :'(

I am sorry to hear about your dog.
My kids are all married and good and my dogs are my best friends.  Besides my wife.  Who did unspeakable... Well they could be spoke.  But sat by my side throughout.
But that's so sad to go through this and have the loss.
Sorry.  That hurts too.

So sorry about your dog. Animals are so loyal and loving...

 

Be careful with the high dose ibuprofen. It is associated with the development of chronic pouchitis. If you need it more than short term, you might consider something else. But regardless, any GI symptoms should make you suspect the ibuprofen as the culprit (like the nausea).

 

Also, you are at the absolute maximum Tylenol dose, so be careful not yo take any other sources (combination pain meds or other OTC preparations), or you risk liver damage. This is especially true with the high dose ibuprofen, which affects the liver.

 

Jan

It's also a very good idea to avoid alcohol when you're on maximum Tylenol doses.

I did not realize ibuprofen will do that.  I will stop it.  I thought it was a high dose anyway.  I don't drink any alcohol but I don't like taking lots of Tylenol either so I cut back on that.  I'm having a difficult time getting the pain under control, the pain meds they sent me home with, I can't even tell if they're working.  i see my regular family doctor tomorrow and she'll get me to where I can function

Got knocked off the internet.  Anyway, my family doctor will be able help me.
Was the 2nd of the 3 surgeries this difficult on others and if so, what did you do to get the pain under control.  My skin even hurts, I have to wear big pajama pants that have stretched out elastic waist bands, can't tolerate it touching my skin.  And how long after the 2nd surgery did the output in the ostomy bag begin to thicken up?  I've been trying to only eat, when I can tolerate eating, things that will bulk the output as well as Metamucil. Any and all advice and ideas are greatly appreciated!!!

For a few weeks post op, opiates are fine. Plus, there is the added bonus of bowel slowing. Pretty small doses can be quite effective for taking the edge off. Just don't expect to be pain free, just comfortable enough to function. Some people like tramodol, which is similar to an opiate, with less abuse potential.

 

Walking and moving about will help mitigate the pain, paticularly the considerable gas pains you can get early on. Don't walk hunched over, but staighten up slowly before your fist step. Eat small, frequent meals so you don't over extend your gut.

 

Jan