I've had so much done to me recently, I don't know where to start!
Takedown was january 23rd. Started Cipro in June and my life changed for the better. Only real problem that still continued was pouch leakage/light incontinence. Feel pretty good otherwise.
Had a pouchoscopy in August while off antibiotics for several days. Pouch looked awesome. Some inflammation in cuff and sphincter muscles a bit weak. start cipro again bc symptoms returned.
September 30th, EUA to find RV fistula. Surgeon referred me to GI for treatment for possible Crohns as fistula was not near the surgery site.
October 3rd - met with GI who wants to treat fistula with remicade. Rectal exam found cuff inflammation, started Canasa. Did blood tests to see if I have remicade antibodies, among other things.
October 6 - met with pelvic floor dysfunction specialist (appt was booked a couple months ago). Was expecting anal manometry test to see if I need PT to address the fecal incontinence. Since starting canasa 3 days ago, leakage has decreased and inflammation reduced. Digital exam still showed some inflammation. Doc wants to wait to see if canasa and remicade will take care of my incontinence issues.
This morning my GI called bc she got some blood results back - c-reactive protien was 63, white blood count was high (16.14). She wants to scope me up higher to see if there's inflammation higher in the digestive tract. I feel ok though, I certainly don't feel like I did last year during my flare and my numbers were elevated. I trust my GI but I don't understand how/if this scope's findings would change my treatment plan. I of course didn't think to ask when I had her on the phone.
I'm just so confused about why my body is not cooperating, is there something serious wrong, I really don't feel bad, my main problem is the bowel leakage.
Katie
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