Cleveland Clinic Surgery 8/21

dibelljwMember

I am having surgery next Wednesday at Cleveland. I have a failed J pouch and Dr. Church is going to either rebuild it or take it down. Im not sure whether or not I should go ahead and have an end iloestomy and take out the j-pouch or try to save it and have a temporary ileostomy. How does that all even work? How does taking it out work? Whats the benefits of an end and a temporary. Im not sure I want to have more surgeries down the road, but also am not sure Im ready to give up and have a permanent ostomy. Any advice would help. Thanks- Joe

8/14/139:38 PM

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jeaneMember

What's the problem with your pouch ? Depending on the issues you could have a successful rebuild. If they are offering a rebuild, I would probably try that route. If you are not comfortable with the odds of success after they try to rebuild you should make your decision before going for surgery. Remember also there is no guarantee the rebuild is possible once they get in there and you could possibly end up with an end ileostomy after all

8/14/139:58 PM

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dibelljwMember

My pouch was built wrong in 2002..It doesnt stand up straight and is too narrow at the top. I told Dr Church I trust him to do what he thinks is best while hes in there, but im leaning towards just telling him to take it out. Isnt an end ileostomy the end of any chance you have of reversing it? It seems like Ive been reading stuff that says an end doesnt mean your shutting down for good necessarily..

8/14/1310:59 PM

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Mike HMember

If you have this surgery already scheduled wouldn't you have alread asked your surgeon or gi these questions.

8/14/1311:26 PM

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vanessavyMember

End can be converted to a Kpouch, they do them there. Always an option with a failed Jpouch. Dietz and Ashburn would be the ones to consult with at CC.

8/15/1311:41 PM

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