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I've heard that Cleveland Clinic is the place to go for Crohn's. I currently have a J pouch and am experiencing a flare up. My GI is trying to convince me to have a takedown of my J pouch and I really want to avoid that. I am seeing my dr today and wanted to ask for a referral to the Cleveland Clinic. Suggestions please...
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Dr. Bo Chen, GI at Cleveland Clinic Ohio, is pretty recognized as the master of managing (and saving) troubled J-pouches. I have heard and read that he doesnt give up on pouches easily... even those with Crohns which is usually contraindicated for getting a J-pouch. He has many tricks up his sleeve, done much publishing on problem pouches, (crohns included) and is internationally acclaimed. Do search on this site or on internet in general, you will find much to confirm that you will be in the best of hands with him.
You have to be on top of him if you need anything once you leave. He is extremely kind and will listen to you and explain things in great detail. I spend an hour usually when I go there. I had a email conversation with him the other night at 11:30, usually he answers best at night when not busy I realize. He is constantly working and busy but calling his nurse has always been easy to get things through if email is not consistant.

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