My daughter has had difficulty with her jpouch ever since it was created. We started with the GI & surgeons at DC Children's hospital where her first surgeries were done.
Once we got to a point where they didn't know what else to do, they referred us to Johns Hopkins. During a routine scope, her bowel was perforated and she became septic and had to go into emergency surgery to go back to an ileostomy.
We have now been referred to Dr. Bo Shen & Dr. Remzi to see about how to save her pouch. I would like to hear from others who may have had pouch revisions at the Cleveland Clinic.
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