Hi Alex,

Sorry to hear that. I have had pouchitis since the beginning too.  Antibiotics will work for a very short time and then it comes flooding back. What I'm doing now is managing it on my own with Pepto-Bismol. I take a small teaspoon almost every day and I do oil of oregano every other day or so depending on the symptoms. And leave it there for a few minutes and then swallow with water.  I also take a probiotic everyday.  I hope this gives you some hope that it can be managed by over the counter items. 

Also, I tried to avoid sugary foods.

I hope this gives you some hope that it can be managed by over the counter items. 

@Alex If you can’t find an antibiotic treatment that does the job it’s likely time to try a biologic medication, like Remicade or Humira. In the meantime I’ve had good luck with adding a high dose of probiotic bacteria to my Cipro+Flagyl antibiotic treatment. I take 4 packets daily of VSL #3 DS. Unfortunately it’s expensive if your insurance doesn’t cover it.

I would try biologics at this point.

I used to use Flagil. Started to make my feet numb. Started using Cipero. Changed to Remacade. Used for a few years and even with insurance and Remistart it was expensive. Got worried about getting a worse disease because of all the warnings on Biologics. Changed to VSL 3 and then to Visbiome when their lawsuit happened. Have been using it with yogurt every day. Once in a while I start to get a few symptoms of pouchites so I do a week of Cipero.  Has been working pretty well that way.

@Brad T posted:

I used to use Flagil. Started to make my feet numb. Started using Cipero. Changed to Remacade. Used for a few years and even with insurance and Remistart it was expensive. Got worried about getting a worse disease because of all the warnings on Biologics. Changed to VSL 3 and then to Visbiome when their lawsuit happened. Have been using it with yogurt every day. Once in a while I start to get a few symptoms of pouchites so I do a week of Cipero.  Has been working pretty well that way.

Do you eat Greek Yogurt???

I make my own Greek yogurt.

@Brad T posted:

I make my own Greek yogurt.

YUMMMMMY!!! I BET ITS GOOD!  i buy mine lol. Sometimes its Buy One Get One Free at Publix

Alex, have you been tested for C. diff? It sure seems suspicious that things seemed to snowball after the course of Cipro.

Jan

Alex, I feel your pain.. I was on Cipro on and off after my takedown in 2016. After doing some of my own research and reading, I come across a lady that started taking Manuka Honey, and her pouchitis symptoms started to dissipate.  So, I gave it a try, and started out on 20 UMF with 2 tablespoons in the morning when I got up, and 2 at night before bed. I have worked down to 10 UMF the past year or so, and I haven't taken any Cipro since the end of 2016. Knock on wood it's worked for me. I use the brand Comvita, and you can get it off Amazon. It is a little pricey, however if it keeps me off antibiotics, then I'm good with it. There are alot of medicinal benefits to manuka honey, but there are knockoff brands out there, that is not the same grade as the Comvita brand who in my opinion are the pioneers of getting it to the market. I'm going to post a link for your reading pleasure below if you want to learn more about it. Good luck!

Diesel

https://www.gaiahealthblog.com.../the-manuka-project/