Chronic pouchitis? Always in pain,what to do?

Did your dr prescribe antibiotics or something to help with pain?  How do you know you have chronic pouchitis?  Have you called your gastro?  Grace

Yes, I am certain. I have completed cipro and ending Flagel but still in pain. Now trying probiotics. Had proctocolectomy 10 yrs ago for ulcerative colitis and just had the rectom remnant or cuff removed.

Yes, I have pain meds but hate taking them

Also using suppositories, uggg

Take your pain medication.  If it doesn't help with the pain then you might need a stronger dose or a different kind of medication.  I also take dicyclomine, I forget the brand name but it is an antispasmodic. Sometimes I need to take it with my Norco. Doctors tend to give us the lowest amount or kind of pain medication we need - which is good but not when it doesn't cut the pain.

Take care

You have chronic pouchitis?

I have chronic pouchitis, but I'm lucky enough that it stays under control as long as I'm on antibiotics (at this point it requires Cipro and Flagyl together to be effective). Are you *certain* that your pain is from pouchitis? I also take a maximum dose of VSL #3 DS, which also seems to help. By combining all three I stay well.

There are other antibiotics that sometimes work well for pouchitis: Xifaxan (expensive!), Tindamax, and Augmentin come to mind.

Good luck!

Yes I have chronic pouchitis now.  I'm in daily abdominal pain that doctors have concluded is caused by 5 open surgeries and the scarring and adhesion aftermath.  There are no physical blockages or obstructions so they won't operate because of them.  I do get pouch pain too. I've gone from intermittent pouchitis to chronic. During a pouchoscope they did a balloon dilation in my pouch, just above the cuff on one side, in February.  My entire pouch was inflamed and more red than usual. It looked a lot worse than it did in my July 2014 pouchscope.  We compared the pictures of both of those scopes.  My GI was thinking then I didn't need another pouchscope for 2-3 years.  7 months later and I needed this so I am to rotate antibiodics 2 weeks on one and 2 on another.  I can no longer take Flagyl as it was making my peripheral neuropathy worse. I can't take Cipro because it gave me c.diff when I still had my colon and I have had c.diff in my pouch.  So I am alternating Augmentin with the very expensive Xifaxan.  30 days of Xifaxan cost over a thousand dollars.  That high price just blows. It and my Feb. visit to Mayo's cost has at least gotten us to the end of our deductible of $4700 annually.  I suggest you try VSL#3DS too.  I have discontinued taking it along with my antibiotics and am hoping to do a week of it 2-3 times a day in-between rotating antibiotics.  I have always used it while taking antibiotics but am trying antibiotics only because my NP at Mayo's suggested it.  

I have also had 5 surgeries over the past 11 years bc of UC, it's been very tough. I am happy to hear about the treatment of others.