Chronic Pouchitis

PkittyMember

I am pondering the jpouch surgery and was wondering if anyone had any thoughts on the following questions I have regarding chronic pouchitis as it is my biggest concern:

(1) What percentage of jpouchers roughly get chronic pouchitis?
(2) Any ideas, thoughts or theories on why, what cause and to whom chronic pouchitis occurs?
(3) How is chronic pouchitis treated?
(4 Are treatments effective for chronic poucitis or do people have to lose their pouch often and switch to the permanent bag?

Thanks!!

10/21/124:23 PM

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Original Post

CTBarristerMember

pkitty,

I answered this question in the other thread you posted in the pouchitis forum. I don't think there is any need to be posting the same thing twice. I would suggest you delete one thread or the other.

There are no solid and reliable answers to your first two questions. Chronic pouchitis is treated in a variety of ways but the most frequent first line of treatment is antibiotics like cipro and flagyl.

I have treated chronic "simmering" pouchitis, mostly successfully, for 17 years with antibiotics and other medications. Some do not respond well to antibiotics, and eventually lose their pouches.

There is no reliable crystal ball here on whether or not you will get pouchitis and if so, whether or not it will be treatable.

In considering surgery you should also take into consideration the risks of NOT having surgery. In my case those risks were greater in my mind, than the situation I have now. I have had the pouch for 20 years and even with pouchitis my quality of life is MUCH better than my 20 years with UC.

10/21/124:50 PM

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