Chron's or UC?

Well, I guess that is the $64K question, eh? Of course, nobody can predict whether you will or won't lose your pouch. Lots of ifs. IF this is Crohn's, then yes, your risk of pouch failure goes up, like from 5-20% to 50%+. But, that does not mean pouch failure is a given. IF this is Crohn's, then pouch removal is a last resort because the primary goal is to preserve small bowel whenever possible. As you know, pouch removal would not cure Crohn's either. Assuming you do have active Crohn's, this might mean you need maintenance treatment (antibiotics, mesalamine, Imuran, and/or biologics). 

Crohn's is a tough diagnosis to make. Hopefully they get on the right track sooner rather than later!

Jan

A pouch inlet stricture is fairly common, but anal stricture is more common. Above the pouch, the most common stricture site is at the ostomy site. Sort of makes sense, right? If there is a random stricture unrelated to surgery, then that is another indicator of Crohn's (I don't mean obstruction due to adhesions outside of the bowel, but a stricture within the bowel wall). A pouch scope may or may not be able to rule Crohn's in or out. There is a lot of gut beyond the scope.

As to resuming Remicade after stopping it, there is some controversy regarding that. Conventional wisdom as been that you cannot resume it due to antibody formation, but some people have been able to resume it at a later date without allergic reactions. A new study, though, shows that Humira is just as effective as increasing the dose or shortening the dosing interval of Remicade when it starts to lose efficacy. Good news with Humira is that you do it yourself, no time sitting around getting IV infusions. It stings though.

I cannot tell if you are weird or not. You better ask your family

Jan