I am so terribly sorry for you cjay,

Unfair does not cut it.

I barely remember...I was so young and I have a k pouch (but that should not matter really)

I did 2 sorts of chemo (they are not always the same drug, chemo is just a catch all name for a nasty chemical treatment against cancer these days)...for vaginal cancer due to DES...I remember being sick as a dog, throwing up my guts (I was around 25 at the time) and losing about 30lbs in 1 month. They hospitalized me for 31 days then gave me the treatment by mouch for 6 months.  My pouch survived just fine and obviously I did too but it was a rough ride.

The second one was following laser abalation of the cancer and it was also followed by an oral drug for 6 months...I can't remember much about it but like I said, it must have worked because I am still around.

The rules of engagement are still the same, stay hydrated, keep up those electrolytes, eat light if you can and well...hope for the best.

Will be praying for you.

Sharon

I don't have any experience with this but I just wanted to send well wishes your way for a complete recovery. 

Hello, I have a jpouch, (2000-2001, UC for 30 years) and was recently diagnosed with CLL Chronic Lymphocytic Leukemia. I now need treatment and based on research and patient reports over 50% of people have diarrhea from mild to severe on the drug will be taking. Ibrutinib or Imbruvica is the name of the drug.  Has anyone on had chemotherapy, biotherapy or immunotherapy and how did their pouch do? What kinds of therapeutic interventions helped?  Thanks so much.