It's good to have this site to learn more as well as vent about your j-pouch. I had my first takedown in Dec 2011, then had emergency surgery in April 2012 and had a bag put back on. 2nd takedown in May. Somedays I think I am healing. Other days I think I was better off with the bag. I have just called off sick from work the past two days because I have been going to the bathroom about 15 times and each time feels like I am passing shards of glass. I feel as miserable now as I did before any surgery, with the exception that I am not bleeding as much. I'm tired all the time. I have no energy. I suffer from frequent I sweat yeast infections because sweat like crazy in my mid section yet my ankles are constantly cold to the touch. Cipro has helped at times but that is only a band-aid on a bigger problem. I crave salt constantly, always eating saltines. I can't seem to hold a job long enough to get any insurance and no employer is interested in keeping around when they see all the trips to the bathroom or the time off work due to BM's and exhaustion.
I had Botox injections done because there was so much pain with each BM that I felt like I was being cut open with a knife.
I'm at a breaking point with no insurance, no job and no joy in life other than a strong soul-mate. I have been told that I should go on disability (I'm in my mid-forties) but I feel that means giving up and this is the best I can expect from my j-pouch.
I'm lost, frustrated, confused and venting. thanks for letting me yell.
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