Hi all, it's been a while since I've been active on here. My pouch turned over 20 this last year, and I continue to deal with "moderate simmering pouchitis" no matter what I try to do.
Antibiotics keeps it somewhat in check (i.e. I can still work and go on with life but with issues), but that is not a fix. Eating gluten free and as low of sugar as possible has seemed to help significantly, but still not good enough to get me off of antibiotics. Going further and eating grain free (not just gluten free) helps another notch more, but still not perfect.
So now I am looking into Celiac testing but running into some roadblocks. Most places I talk to want me to eat gluten containing foods for while before they do the testing, but for me it might be easier to eat a box of thumbtacks - gluten and grains mess me up bad. I refuse to eat gluten anymore, and when I accidentally do I'm in bad shape and have severe symptoms just like when my UC flared bad prior to the colon removal.
I've also been told that since I typically have so much inflammation the testing is more difficult.
So I wonder, is there any way to get tested for Celiac without having to first eat gluten for a while? And also, are there any tests for people like me that have a pouch and moderate pouchitis and inflammation all the time? Thanks!
