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My wife ran a 1/2 marathon in Napa, CA last year and raised over $2000 for CCFA as a part of CCFA's Team Challenge. Well this year she's not running, but our 10 year old daughter (and fellow j-poucher) is the team's Honoree. She has been to several team events and inspires the runners whenever she can Smiler This year CCFA in Kansas City has more runners with direct connections to Crohn's / Colitis than ever before - so a good year for Kaitlyn to do this. Check out her page (and picture), and the testimony my wife wrote up: http://www.ccteamchallenge.org...sascity/Honorees.htm

Funny thing too - we found out that our daughter's hospital-mate and soon-after fellow j-poucher was the CCFA Take Steps walk Honoree this year. It's reconnected the two of them, and is so cool to see them both active in promoting fundraising for CCFA.

And in case anyone with j-pouch kids ever wondered, I found out that j-pouch kids are absolutely qualified for CCFA's free residential camps at various locations throughout the country. I was told any kid who has ever had, or has, Crohn's or Colitis can certainly apply as a camper. Maybe in a couple years - she's going to camp with church for the first time this year and we'll see how it goes.

Steve

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P.S. She was also diagnosed this year with "acute, chronic pouchitis." Wow - we really had no idea. She never complained, and wouldn't have wondered if she hadn't started experiencing nighttime accidents. I guess we had some suspicion - low zinc levels, and years of gasiness and runny stool (but it never bothered her one bit). Anyway, she went for 3 weeks with mesalamine enemas (oh joy) and is now on sulfasalazine to see if that helps. VSL3 was the other option, but honestly if she can tolerate sulfasalazine at $5/month I will take it over VSL3 at $80/month any day.
ElmerFudd

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