Hi Guys,
For anyone who's had to do either or both of these (catheter or self dilation) can you please tell me the exact process involved, if its helped, how long you're expected to do it for etc.
I had my reversal 2.5 years ago after emergency surgery due to Toxic Megacolon. I had extended hospital stays due to multiple complications and I also have a serious blood clotting disorder.
My pouch has never worked and I currently have the following issues; previous surgeon has left in 3 inches of cuff and I now have; severe Cuffitis, chronic and severe pouchitis in 100% of pouch, a permanent stricture that won't go away, unable to empty pouch properly. On top of this I have a ton of scar tissue seen on the scans that have caused; my pouch to partially collapse, my bladder has prolapsed and is stuck to my intestines above the pouch and I have multiple loops of bowel above pouch stuck together causing kinks and blockages and because of this my pouch also won't fill properly.
I go to the loo at least 30 times a day and have done since the reversal, suffer nocturnal incontinence, vomit alot and have the usual pain and discomfort you'd expect from all of this.
I'm now seeing my second opinion surgeon who originally offered to remove my pouch and build me a second one but now he's back peddling and saying a need to try a catheter and self dilation first. I'm really anxious about this and I really don't think it will work.
Any ideas?
Thanks, Tamara
For anyone who's had to do either or both of these (catheter or self dilation) can you please tell me the exact process involved, if its helped, how long you're expected to do it for etc.
I had my reversal 2.5 years ago after emergency surgery due to Toxic Megacolon. I had extended hospital stays due to multiple complications and I also have a serious blood clotting disorder.
My pouch has never worked and I currently have the following issues; previous surgeon has left in 3 inches of cuff and I now have; severe Cuffitis, chronic and severe pouchitis in 100% of pouch, a permanent stricture that won't go away, unable to empty pouch properly. On top of this I have a ton of scar tissue seen on the scans that have caused; my pouch to partially collapse, my bladder has prolapsed and is stuck to my intestines above the pouch and I have multiple loops of bowel above pouch stuck together causing kinks and blockages and because of this my pouch also won't fill properly.
I go to the loo at least 30 times a day and have done since the reversal, suffer nocturnal incontinence, vomit alot and have the usual pain and discomfort you'd expect from all of this.
I'm now seeing my second opinion surgeon who originally offered to remove my pouch and build me a second one but now he's back peddling and saying a need to try a catheter and self dilation first. I'm really anxious about this and I really don't think it will work.
Any ideas?
Thanks, Tamara
