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Hi, everyone.  I am doing very well almost a year out from a pouch redo with Dr. Remzi and feel great.  I know, I count my blessings every day -- I am extremely fortunate to have a pretty normal life now.  There is one thing that I am curious about.  While I am pretty active with work, projects around the house, bike rides, etc., I have a thought in my mind that I'd like just a bit more energy.  

Since I don't have a colon, I think about absorption, nutrients, etc. -- do we j-pouchers suffer from a bit less energy, generally, than "colonies?"  (I just made that up, funny, right?)   Would there be a medical reason because of no colon and does anyone have recommendations?  

Truly, I am very satisfied, but I wonder if I can get a bit more kick!  I am 55 years old but I think I run out of gas just a bit prematurely.  I went camping with my nine year-old for four days and it took me two days to recover. I think I can do better?

 

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Have blood tests done.

I felt the same way since mine was removed 3 years ago. 

I found out I had an iron deficiency.  So.  I started taking iron and lo and behold my energy slowly came back.  Now I have energy all day.  I make it through an eight hour shift at work without feeling like my legs are rubber!  

I only take 65 MG a day and it's made a world of difference to me.  Something so simple. 

I'm 60 years old.  Felt like an 80 year old.  Which I am not saying 80 year olds have no energy.  But I was beat after 6 hours at work back then. 

Just a thought. 

Richard. 

Last edited by Mysticobra

If everything is working as it should, lacking a colon should not deprive you of any nutrients other than water. It goes without saying that chronic dehydration can be a cause of fatigue, but I doubt that is what you are talking about.

So, back to the "if everything is working as it should" concept. If you have pouchitis or have lost some of your terminal ileum (like having a pouch redo), you are more at risk for B12 deficiency. Plus, it is more common as you age. You have to have a serious deficiency for pernicious anemia, but low levels can cause faitgue. Iron deficency is a chronic problem for some and it leads to anemia too.

If your transit is too fast to fully absorb nutrients, that is an obvious problem. Your first clue would be an inability to gain weight. If you can gain weight, this is not likely an issue for you, no matter how many trips to the toilet you make in a day.

Also, do not underestimate the effect of chronic sleep deprivation. If you are awakened frequently, the loss of REM sleep can wreak havoc. 

Jan

Electrolyte deficiency is often overlooked.  

I've had many issues of seriously dehydrating, to such an extent I've been admitted into Hospital for IV infusion; at the time, it was due to my temp ileostomy and not being able to consume the required fluid intake orally.

Since takedown, I've tried to ensure I monitor my fluid intake via my fluid output (i.e: urinate at least a min of 3 x per day) although, at times, I still can't shake off this feeling of fatigue, even though I drink regularly and also drink the emix solution which replenishes my depleted electrolytes.

Fluid intake is not the be all and end all fix; sometimes we must also replenish electrolytes.

It's not as straight forward as I've describe, sometimes. it appears the emix solution has made all the difference but next time, it has no effect whatsoever.

It's just as important to maintain our electrolytes.



Following extract is gleaned from a St Marks Hospital patient information leaflet:

St Mark’s electrolyte mix

This is a specially formulated drink which is high in salt to help your body absorb fluid.

The electrolyte mix needs to be made up freshly every day, to do this you need to measure out the following powders:

20g (six level 5ml spoonfuls) of Glucose

2.5g (one heaped 2.5ml spoonful) Bicarbonate of Soda

3.5g (one level 5 ml spoonful) of Sodium Chloride (salt)

This needs to be dissolved in 1 litre of cold tap water

Adding a small amount of squash, fruit juice or cordial to improve the taste

Last edited by Former Member

Yes, I definitely echo everyone else. Time for blood tests. Every time I have felt tired and run down, it has almost invariably been the result of low iron/hemoglobin (once it was potassium). After my collectomy, I was so chronically tired that I had accepted the situation as my new norm. Turns out my former GI's office had neglected to inform me, after blood tests, that my hemoglobin was hovering around 8.5 to 9.  I FINALLY my iron levels sorted out, and I can't believe I walked around like that for nearly 2 years.  Now I'm very active - I regularly horseback ride, run 5Ks and go to yoga 3x weekly. It's like night and day. 

Feeling hungry, especially not long after eating could be a sign of an electrolyte deficiency.

I would normally say; a sign of dehydration, but the term dehydration is often misconstrued.

Like myself, you could be confusing the craving for electrolytes, especially potassium as feeling peckish (hungry).

With a J pouch, it's often stated we must increase our fluid intake to compensate for the fluids we can no longer absorb due to the loss of the colon, so we must remain hydrated, which actually means, maintaining a healthy balance of electrolytes and not the feeling of thirst.

Last edited by Former Member

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