It has been a while since I was here so I will update you on what is going on. This year I went to Mayo about a big ulcer in my pouch. It took multiple trips because as BoShen had predicted I got Cdiff for the first time there...twice. It didn't help that after the first bout my doctors's assistant put my on Cipro, which I gave him the look of, you must be out of your mind, and I said, "really???" ok anyway what turned out to be the best way to treat my ulcer was minimize my pouchitis meds and treat my pelvic floor dysfunction again. I didn't realize PFD could have so much to do with my ulcer but...I went home for physial therapy.

I stopped bleeding which I had been doing every BM...hadn't done so at all for at least 2 months had been out of therapy for a month and I get a UTI(urinary track infection). My bladder lining is a lot like my colon so I has to treat it...but I was doing so with caution. The second day in I had a change in the color of my stool and a few other symptoms that were a lot like my experience of Cdiff. I kept my eye on it and when I noticed more a few days later and a smell I called on ask a nurse if I needed to get tested right away or could wait. Well, they heard my whole story and told me to go to the ER where they took a sample, tested my blood which was normal and released me. The Ddiff was negative.
I figured, or wanted to believe that symptoms were fear induced so if I ignored them. Not sure why I thought that would work it never did in the past. In stead I got worse. This time I saw my local doc who tested my for Cdiff and a few things ( SALMONELLA, SHIGELLA, CAMPYLOBACTER OR STEC ) that came back negative. I am gassy, in pain, loosing blood, but having changing bms. I have a home biofeedback...it says I am relaxed lol So I am pretty sure I am back to needing an expert to figure out what is going on this time.

thanks for your help