i am staying positive. Having my first Entyvio infusion and in 4 weeks I can reconnect!
i was never so happy to take a biological drug and believe me I hate taking any kind of meds.
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Good luck and keep us posted on your progress. I just got word today that my insurance company approved Remicade for pouchitis. My Doc is giving it 3 months and if it doesn't work plan B is Entyvio, so I will be interested to know how you are doing. He told me Entyvio is actually safer than Remicade, but we are trying Remicade first because "there is more data on its effectiveness on pouchitis." His words-
CT, yes he is right. Unfortunately for us there were no trials for pouches so we are our own trial. That said my Dr also told me that they are finding that it's also not as efficient in pouchitis as it is in UC but hopefully will do enough for me. I tried Remi and got very sick from it but it did work about 2 treatments for over 3 years. Since I had melanoma I'm not really a candidate for any of these bios but this seems to be the safest. Since I now have been thrown a loop with this diversion pouchitis my only choice was to try this, get reconnected or pouch removal. It still may come to that but I'm giving it a fighting chance.
Good luck on Remi. I meet a lot of people who where on it for years, no problems.
bye bye! good luck, hope it works for you.
I'm also trying Entyvio, going on my 6th week, but not really noticing much of a difference but still hoping, good luck to you, keep us posted. 
They say the turning point is after the third infusion. Are you on anything else in the meantime. I'm going to ask my GI about this as I will on,y have 4 weeks into my reversal. They wanted me to wait till after the third but I just have to get rid of this bag.