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FM
Former Member
Everyone is different, but I have found that making sure your butt is absolutely clean before applying Calmoseptine following a bowel movement is imperative. We bought an electric bidet toilet seat which sprays water on your anus after you pass stool. It also has a drying function. Even so, I asked my wife to check for any residue that the bidet did not catch. So she takes a moist cotton ball and swabs me down ao that there is nothing at all left, not even a bit of colored moisture. At this point I am dry and then she applies a bit of Calmoseptine lotion on a q-tip to the two sides of the anal opening. I put a cotton ball or two on top and then slide my underpants on and I am good for a few hours. I also find that where I sit makes a difference--no hard surfaces! We went out and bought three kitchen seat covers for our wooden chairs and it helps. I am much less sore. When I go to work this coming week I am going to wear a Depend Real Fit--and actually bring a couple extras just in case. I am determined to get healthy and resume normal life!

One other tip on food--I find eating salmon and rice at night and pancakes in the morning really help. The pancakes seem to delay any bowel movement until late morning and the rice tends to make my bowel movements less painful.
I also take Metamucil three times and day. A few times a day I will take my prescribed pain med which is Norco. As others have said, not only does this ease pain, but it also tends to slow down the frequency a bit. I will repost again as I learn more tips!

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thank you for the calmoseptine mention. I had read on a sheet in some handout it was good and I went out and got some. It will definitely be my go to cream.

Your wife is amazing if she does that. However, I would like to keep one or two things a mystery between me and my wife, and I'm not about to ask her to look into my anus every time I go. I go often as well. I fell like the bathroom is a waste of time and want to spend as little time in there as I have to.

I use wet wipes after some tp to get a really good clean then apply a cream myself and wash my hands thoroughly. If I'm eating my bland foods consisting of whole grain mostly I don't get any severe burn. Just avoiding spice and fatty foods is enough for me to not have significant problems even with going all day.
O
Pouches seem to work differently for everyone. Your body may just be producing a lot of bile. I would try to avoid all fats, your body has no need to produce bile if you don't have any fats in them. Fish has omega fats, which are good for the heart, but fats non-the-less.

Until you see your doctor that is the only thing I can say. You also may have very sensitive skin. Try a Benzocaine as well in orajel form. Like Menthol, it is a topical anesthetic, and may help a minor bit.
O
I want to give an update and say that a few things that my surgeon recommended have made my life incredibly better in just two days.

First, she ordered lomotil for me, and I am taking that 4x a day, which has dramatically slowed down the number of bowel movements. She also prescribed a mixture of three ointmenst that I am now using that are already clearing up my skin irritation at the anal opening: lidocaine, nystatin (both prescriptions) and the over the counter desitin. I also am using Oil of Olay bar soap to clean the area each time I go. I have a bidet toilet seat that has both a washing and drying function and that helps. What is crucial is to keep everything as clean and dry as possible prior to applying the ointments; I noticed that there is a yellow liquidy substance that accompanies my movements and I make sure that that is all wiped up and cleaned out--otherwise, I am guaranteed to have butt burn.

I am happy to say that today, for the first time in 6 months (since my March colon cancer surgery)I did a 15 minute workout in my gym. That was a big psychological lift. Without the meds and the ointments that I? have been taking for two days now, that would not be possible.

One final point: I sometimes use Depend Right Fit as underwear-typically when I go into the office--and otherwise, per my surgeon's advice, I place a small piece of gauze over the ointments I applied to absorb any leakage that occurs.
FM
I think I will continue this posting with another update. I saw a Stanford dermotologist for my butt burn and had her do an exam. Her recommendation was to use only Vasoline or Aquaphore, and not things like Nystatin or powders like Gold Bond. She said, "Keep it simple, clean and dry and use LOTS of Vaseline or Aquaphore." What I can say is, despite diarrhea outbreaks because I either am not taking precautions--like a pre-emptive dose of immodium or not monitoring closely what I eat--I am doing much better than two or three weeks ago. I am guessing that you veterans out there who are in the 95% of J-pouchers who are satisfied (according to a UCSF study) with your pouch, have long ago figured out.
FM

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