Butt burn

the hopeful answer soon. there are many many many threads on butt burn. so a search may be helpful to you. the question is what are you eating? are you eating soluble fiber that will tend to absorb liquid and reduce the tendency to butt burn. are you using something like Metamucil to do same. are you eating spicy foods or other fast transit stuff which insists on finding a quick exit? are you using a diaper rash cream after each bowel movement to help heal and alleviate the burn? so many questions... good luck. it sucks but eventually you learn how to manage it. it will not just stop of its own accord if that's what you are asking.

I'm basically eating like I used to eat with my colitis. Minus chocolate, soda, or any caffeine. I'm also using wipes, sith bathes, and all kinds of ointments. The best so far has been calmoseptine. I have spurts of feeling ok and then as the day goes on the gassy, burning sensation starts. I take pepto and Imodium and I also drink metumucil. I just feel like this still has a hold on me and I can't do some of the things I used to do. I just want to see more progress. 

so you are about 4 months into takedown. many here will suggest that it can take up to a year to adjust. some of this adjustment has to do with your body learning to adapt to the missing organ. I don't know what your eating was like when you had active colitis. I don't know if you've reviewed the dietary guidelines tab on here under the information tab. I know some people here eat fruits and vegetables, I don't. I very rarely do. I find that they fly through my system putting me at greater risk of butt burn. regarding pepto, while I think again that some here use it, I think it has aspirin and as such I wouldn't use it, but that's more my own personal adherence. if it helps you and you don't find it harming, carry on. be patient and kind to yourself.

I am 9 months post takedown and I still suffer from intense butt burn from time to time. I take cholestyramine (a bile acid sequestrant) every day before big meals and that significantly reduces the amount and intensity of butt burn that I experience. I have noticed a slight improvement in the burn since my very early pouch days, so I know that it will just take more time. I feel, though, that I will  have to take cholestyramine for the rest of my life. 

Emmy I wonder have you tried using Metamucil? it would add some form to your stool, sop up some of the liquid. The bile acid sequestrant might also be serving to slow you down as they sometimes use that med to treat diarrhea. I mean technically loose stools I think are diarrhea but as I always say to the nurses, loose stools are my life, but I equate diarrhea as a term to sense of urgency which I don't have. full disclosure I don't use it anymore, but for probably close to two decades I used it and it seemed to work. in fact who know if maybe I had continued using Metamucil I may not have developed the issues I have now.

DeweyJ if you don't mind me asking what issues are you having now? I think I get nervous. I made this decision to have surgery to have a better quality of life. Since the summer of 2014 my health started to deplete because of the colitis being active and my body was rejecting the medicines I was on. I just want to continue to stay hopeful and hopefully avoid any big issues. It's just been depressing in a sense. I just want my life back. 

my pouchitis morphed from occurring about every 18 months to every 3 months. so my new doc, I had relocated to the west coast, clinically diagnosed me with crohns, wanted to put me on Remicade. Remicade back then about 10 years ago was a relatively new med and while I heard good things, I was also reluctant to go on a med for the duration. kind of got used to living life without meds. maybe why I quit the Metamucil too, I don't even recall making that active choice. anyways we tried rotating antibiotic therapy monthly for about a year and I developed an allergic reaction to Augmentin and arguably was still somewhat symptomatic ie increased bowel movements. Finally jumped on the Remicade bandwagon and after about 5 infusions was like whoa this is great, bm's decreased. couple years further down the road I start to obstruct, never had before in my life. it was pain that had me praying to every known and unknown deity or any approximations. we then discovered I had strictures in my mid pouch and just above pouch opening. technically these strictures are the only confirmation of crohns. we have never successfully biopsied crohns tissue from my jpouch or elsewhere. I am now maintained on Humira and methotrexate and while better than I was, I currently battle the strictures which require dilation approximately quarterly, and a half size pouch. imagine a sand timer, that's what my pouch looks like so in essence I have half capacity in my jpouch. which means I must evacuate more frequently and sometimes have to almost immediately resit to complete evacuation. I also presently am fighting ischemic pouchitis but that is self inflicted from full marathon training. but life could be worse.

crohns can happen, but I wouldn't worry about it so much. you'll be alright. just be patient and kind to yourself as you progress these next few months. still early days. I have had my jpouch almost 30 years.

Your story, wow!! You have such a great attitude and thank you for that!! You have given great advise. Thank you for replying back. 

I'm 13 months out from takedown and at 10 months, my butt-burn (and other issues) *finally* receded!

I have issues now when I eat the wrong foods, but overall I'm about as close to my new normal as I can be.

So, hang in there. Unless you have additional health issues over and above, there is hope.

I'm now feeling the best I've felt in almost 16 years.