Marie I hope you are slowing your stools down with lonox. The first year I took 3 in the morning and 3 at PM. It helped. Also you can get a catheter from Edgepark pharmacy 30 French and put it up your rectum to empty your jpouch. Kock pouch people use it to empty. I did not know this little (pearl of wisdom) the first 6 years of a burning rectum. I have just gotten a permanent ileostomy.

If I knew this was where my journey with Ulcerative Colits ended I would have stayed with catheterizing my rectum in 2005 when the surgeon gave me the catheter due to my jpouch not putting out stools. It keeps the stool off the sore skin so it can heal Hang in there you will get there took my over a year. Jeanne

Jeanne Lots of reading on this site will really help. Don't get overwhelmed with all the info. Jan is a nurse and can be very reliable. She has a pouch and is a great researcher and RN

Maria, lots of folks report that standing up sometimes releases a "second wave" of poop. I don't have the patience for 15 minutes on the toilet, but if I notice that I need another round after I stand up, that's fine with me. I'm lucky to not have any pain with it, unless I have active pouchitis.