Skip to main content

so here I am again asking my fellow pouchers for advice. I had my takedown 6-30-14 started my first week and half posttaken down with 20+ BM, dr put me on Cholestyramine and increased immodium to 2 tablets 2xday decreased to 10-14 BM for about a week some BMs were formed and some not. Wham! back up to 18-20BM's a day, dr increased immodium to 2 tablets 3xday, drink benefiber 2 days a day and stop cholestyraime. Last night I had 20 BM's and not one was formed. My rectum feels like it is on fire. I put call in to DR today but it's friday so I hope I get a call back. I want to go back to the cholestyramine but not sure if this is the answer. I was having increased BMs even when on this. What could possibly be going on. Some of my BMs look like I have white tissue in it. Any one experience this? I'm feeling hopeless and feel like I'm back to square one (UC again). Frowner
Original Post

Replies sorted oldest to newest

I had my reversal on June 25th, so it's a month today. From the first week I've been on antibiotics for a small abscess at the take-down site and then for a skin infection. I've had no ill-effects from the antibiotics except for tiredness (maybe). Is there a reason that your doctor doesn't want to try a course of antibiotics yet? Especially if your blood work shows an infection.

Frequency hasn't been an issue for me; I don't know if it was the antibiotics or just my luck. How many weeks between the J-pouch creation and your take-down? I ended up waiting 3 1/2 months.
ks1905 my dr wants to wait to see what the culture shows, I don't understand myself. I have had this UTI since April 26th the next day after my 2nd surgery to create the pouch. I waited two months from the time my pouch was created. That was on the recommendation from my surgeon. I had no issues or problems with output prior to take down. I am so frustrated!
MAS, are your BMs urgent?? Are you having any incontinence? Did you have any rectal symptoms like pain or urgency while you had an ostomy?? Do you have any blood with your BMs??

To have a very difficult first three months can absolutely be normal, but there is no reason not to be cautious at the same time. Recovery from take-down is a very broad spectrum of people doing very well right away, to other people needing several months for their bodies to adjust.

At some point if there is no improvement, you will need to get a quick pouchscope to see what is going on. Without one, there is only patience or making an assumption that you are experiencing some type of pouchitis or cuffitis issue. Suppositories or antibiotics would be there treatment.

Dan

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×