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I was diagnosed with UC in 2006. With no remission and trying all drugs possible (Imuran,Prednisone,Remicade) I had to have my colon removed in 2009.

 

Ever since the last take down surgery I've suffered with pouchitis. I go to the bathroom 15-20 a day (including 2-3 times during the night).

 

I'm wondering how many times other fellow j-pouchers go to the bathroom, people with or without pouchitis just to see what is a normal amount? (although I know everyones normal is different)

 

I've started Humira and have only had my first dose. Will post more with more time on that.

 

Thanks

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I had my takedown 3 years ago Gavin had my colon removed, ,& go to the bathroom 15-20xday. Recently I had a sigmoidiscopy and the Dr said I had a bit of piuchitis. I was on Flagyl for 2 weeks and felt  like a million dollars . My frequency was cut back and I could finally sleep more than 2 hr ntervals at night. Even the butt burn and pain was reduced.

BUT..within 24 hrs of finishing the flagyl, the frequency  is back, & having some butt burn. I asked the Dr if he could prescribe an anti inflammatory to use. Waiting to hear.

He suggested going back on Flagyl the first week of each month, for just a week as maintenance. But for the 3 weeks in between I'm afraid I'll be in  misey again.

 

 A healthy, well-functioning pouch will tend to require 4-6 bathroom trips daily. Some cases of pouchitis are simply cleared up with 10-14 days of Cipro or Flagyl. Other cases (like mine) turn out to require continuous treatment with antibiotics, preferably rotating among a few different antibiotics every 2-3 weeks, if you can find a few antibiotics that are effective for you. 

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